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Campaigning for Improved Survival

Government Cancer Policy

The government recognised that there was a need for improvements in cancer survival rates and organization of services in England and implemented the 2000 NHS Cancer Plan

Cancer Campaigning Group

The Cancer campaigning Group(CCG) is an influential coalition of 35 national cancer-related charities, including Pancreatic Cancer UK, led by a steering group comprising Breast Cancer Campaign, British Lung Foundation, Cancer Research UK, Cancerbackup, and Macmillan Cancer Support.

The CCG, while recognising the many significant successes of the 2000 NHS Cancer Plan, believes strongly that it needs to be updated in the face of new cancer care and treatment challenges, and a changed public health environment.

The CCG launched its campaign calling for a second cancer plan in 2005. More information about the CCG can be found on the website www.cancercampaigninggroup.org.uk.

Last July the CCG undertook its own 'Green Paper' consultation on the future of cancer services, asking patients, professionals and experts to identify where improvements could be made in current cancer policy. Responses highlighted the need to tackle the huge differences in survival rates between cancers, and the persistent socio-economic inequalities affecting prevention, research, care and treatment.

In November 2006 at the All Party Parliamentary Group on Cancer "Britain Against Cancer" meeting Patricia Hewitt announced plans for a "Cancer Reform Strategy".

After its "Green Paper" consultation amongst its member charities and views of others involved in cancer policy including patients, carers, health professionals, academics and researchers the CCG produced a White Paper "Getting it Right for People with Cancer: What the Voluntary Sector wants from the Cancer Reform Strategy" which was launched at the House of Commons on Tuesday, 20 March 2007. White Paper(pdf).

The 'White Paper' covers all areas of cancer prevention, care, treatment, information and support, and research.

Pancreatic Cancer UK has been able to use this opportunity to raise the profile and highlight the needs of the neglected and poor survival cancers such as pancreatic cancer.

This has complemented discussions over the past few years between Pancreatic Cancer UK and members of the All Party Parliamentary Group on Cancer and the National Cancer Director and chair of the NCRI, Professor Mike Richards.

Dr Ian Gibson chair of the All Party Parliamentary Group on Cancer tabled an Early Day Motion on 19th March 2007

"That this House commends the work of the Cancer Campaigning Group (CCG) and its White Paper Getting it right for people with cancer; acknowledges that the CCG's Campaign for a Second Cancer Plan has set a new benchmark for third sector unity and achievement; hopes that the White Paper will inform the current development of the Cancer Reform Strategy, particularly to improve progress for rare and poor survival cancers and to reduce inequalities; notes that considerable improvements in outcomes for people with cancer could be achieved with more efficient targeting and distribution of resources, using the tools available within the reformed NHS; and calls for sustained increases in investment in prevention, research and care and treatment, to improve the lives of all people with cancer. "

Pancreatic Cancer UK was represented at the launch of the White Paper by trustee Dr Ian Kemp and patient Trace Allen who were able to again raise the needs for pancreatic cancer with Dr Ian Gibson (chair of APPGC), Professor Mike Richards and Rosie Winterton, Minister of State for Health Services.

Cancer Reform Strategy

In a Cancer Reform Strategy progress report, Professor Mike Richards (National Cancer Director), explains that the Strategy will cover a 5 to 10 year period and will be submitted to ministers in autumn 2007. A number of key areas have been identified for detailed examination. These include:

  • clinical outcomes measurement;
  • patient experience;
  • provider development/service models;
  • commissioning and levers for change;
  • costs and benefits (value for money);
  • awareness and early detection.

Professor Richards states "We will also be closely looking at both the common cancers, and those which are less common".

In messages to PCUK Professor Richards has said " I, for one, will keep making the case for poor prognosis cancers.... I can assure you we will not forget the poor survival or less common cancers in the Cancer Reform Strategy."

Information on the advisory board and working groups has recently been announced.

Cancer52 meeting with Mike Richards

As a result of discussions with Professor Mike Richards, Pancreatic Cancer UK was invited to join a coalition of cancer charities called Cancer52 set up at the instigation of Mike Richards to further the cause of the cancers outside the big four of breast, lung, bowel and prostate. The name adopted by the coalition Cancer52 reflects the fact that 52% of cancer mortality is due to cancers outside the big 4.

Pancreatic Cancer UK attended a meeting of the Cancer52 Group with Professor Mike Richards, the National Cancer Director, on 2nd May 2007 to discuss the Cancer Reform Strategy.

The Department of Health wanted to make sure that their consultation on the Cancer Reform Strategy captures the patient perspective as far as possible. They wanted our feedback to be summarised under 5 main headings. These were:

1. Improving symptom awareness and empowering patients to discuss and describe symptoms with healthcare professionals.

2. Improving the awareness and understanding of healthcare professionals.

3. Improving the patient experience of living with a less common cancer (patient experience in the community).

4. Improving the patient experience of being treated for a less common cancer (patient experience in hospitals).

5. Describing our collective aspirations for cancer services in England and Wales by 2012.

Upper GI working Gorup meeting with DoH

Pancreatic Cancer UK has also been invited to a working group of Upper GI clinicians on 31st May 2007.

There is still time to influence the Cancer Reform Strategy and we would love to hear your views on what you think is needed to help pancreatic cancer patients.

Either email us by clicking here or send to

Pancreatic Cancer UK
31 Brooklyn Drive
Emmer Green
Reading
Berkshire
RG4 8SR

or ring Sue Ballard on 0118 9472934 or 07940 929643