Ron

RonRon, 69 diagnosed with inoperable pancreatic adenocarcinoma in March 2009 which had spread to the liver

I first started experiencing itching all over my body in October 2008, this soon developed into jaundice. After extensive blood tests and a CT scan I was diagnosed five months later in March 2009 with pancreatic cancer. Because the tumour is at the head of the pancreas, this can make it extremely difficult to be detected and thus it can only been seen when it is further advanced. At this stage apart from the itching and abnormal liver count I was feeling very well.

I was scheduled for a Whipples operation mid March 2009 but unfortunately this could not be carried out as it was found that the cancer had spread to the liver. A palliative operation was carried out instead to prevent me from being jaundiced. I was told that I had six months to a year to live at this stage. I was discharged from hospital after two weeks but a drainage site from the operation turned septic and made me feel very poorly for a time.

After a few months I started a course of chemotherapy, which initially was successful in reducing the tumour. During this chemo treatment I experienced the usual discomforts of losing my taste and extreme tiredness. I also experienced flu-like symptoms immediately after chemo but this only lasted for a few hours each session. Luckily I didn't lose my hair. I kept my spirits up by looking forward to family parties and regular outings with my wife and daughter.

In time the chemotherapy ceased to work as it was found that the tumour had grown, so subsequently the chemo was stopped.

Several months elapsed before I took part in a Phase 1 Study which wasn't very successful as I was getting unwanted side effects so the treatment was stopped. I again carried on without any chemo and decided I could do with a holiday, so my daughter and son-in-law took my wife and I to Tenerife where I had a terrific holiday. After coming back from Tenerife I wanted to go on holiday again so my wife and I booked a holiday to Egypt and again had a terrific time. I must add that I was unable to get insurance for my condition and just did a lot of praying. I am determined to enjoy my life and I am always looking forward to either a holiday or a party.

During all this treatment I still find time to help raise money for pancreatic cancer research by have a Christmas bazaar and table top sales on year and the following year we held a coffee afternoon. Over £1,200 went to Pancreatic Cancer Research Fund and over £600 went to Pancreatic Cancer UK. We are now planning another table-top sale for Pancreatic Cancer UK. I could not do this without the continued help of my family who give up a lot of their spare time trying to raise awareness of this devastating cancer.

I am now on another Phase 1 trial and am doing very well apart from occasionally feeling tired, but it is too early to know whether this trial will be beneficial.

I sincerely believe that my attitude to life has kept me alive this long. I set myself goals, for example a birthday party, anniversary party or the arrival of a new grandchild. My family offer me great support and cheer me up when I am feeling low.

Last but not least I must mention all the hospital staff, doctors and nurses who have been involved in my care. They do their utmost to help me and their expertise, encouragement and dedication help me no end. In every oncology clinic which I have attended the doctors and nurses have shown me so much kindness and consideration way above which can normally be expected. They love their job and it truly shows. Their kindness is humbling.

March 2011