Claudie

Claudie, 60 - diagnosed with operable adenocarcinoma in 1996

My story starts back in 1996 when I had an operation for a benign cyst on my liver. However, during the operation, the surgeons spotted what they thought might be a tumor on my pancreas. To be on the safe side, they removed the tail of the pancreas. Later tests showed it to be cancerous; I was extremely lucky. To catch a pancreatic cancer so early is usually unheard of, but I was fortunate that this operation came at such a crucial time.

In 2003 I developed diabetes. This was found to be caused by failure of the remainder of my pancreas due to a new cancer (unrelated to the original). The consultants believed that this was a unique case. After complete removal of the pancreas, by a Whipple procedure, and a course of chemotherapy I made a complete recovery.

In 2006 I started to experience some problems, including high fevers and jaundice. Further tests revealed a metastasis cancer around the bile duct. I was told at that time that there was only a very small chance (<2%) that any further chemotherapy would have any effect at all, let alone reduce the cancer. However, it worked! The cancer markers reduced back to normal levels and a CT scan confirmed a significant reduction in cancerous tissue. Over the next year the cancer regrew and caused a bile duct blockage resulting in the need for a stent. This worked for a while but a second stent was required. This worked for even less time and a "covered" stent was fitted. It is still possible for the duct to become blocked for other reasons and so a permanent drain tube was fitted, which also allows for easy access should a problem occur. Late in 2010 a second tube was required to assist drainage.

During the period from the insertion of the first stent I have received three further courses of chemotherapy and, in 2011, a course of Radiotherapy. I'm pleased to say that the cancer is under control and I am able to lead a normal life despite the need for the drain tube which needs flushing every two days and redressing every week (this is something the hospital taught my husband to do). Of course I am now diabetic and have to inject myself several times a day and think carefully about my diet, but I manage to keep it under control.

It's been a tough road at times, but my journey shows that pancreatic cancer is beatable. I am lucky to have an amazing group of medical staff taking care of me. I have also received great moral support from my family and friends over the years, particularly from my daughter who, several years ago with one of her friends, raised money for Pancreatic Cancer UK on my behalf, and all those affected by pancreatic cancer, by running in the Paris Marathon.

February 2011