Trevor

Trevor, diagnosed in 2009 with adenocarcinoma in the head of the pancreas

My experience with pancreatic cancer

In early May 2009 I suddenly felt slightly unwell one evening. The following morning while driving to work, I had to stop the car at a hotel where I was violently sick outside. Thinking it was a stomach bug I thought nothing more of it but continued to feel a bit under the weather and increasingly sluggish. Some two to three weeks later I turned yellow from head to toe and had to see a doctor.

I went to see a private doctor who gave me a blood test and called me the same evening to advise me that a specialist would call me shortly. A laparascopic surgeon did call me to tell me that my blood count was totally off the wall and would I like to report to a certain hospital the next day for further tests.

As a result I was diagnosed with a masshead or tumour at the top of my pancreas. However I was told that it was operable without chemotherapy and that I was the ideal candidate for this operation.  Meanwhile I had a stent put in so that at least my face was no longer yellow.

I then had a successful Whipples or pancreas resection procedure carried out at the Wellington Hospital, London, on 26 June 2009, by a very good Italian surgeon. I call it my Italian job.  I was then discharged on 8 July. In fact I was quite happy staying there watching the First Cricket Test match between England and Australia. After that I stayed at home for a few weeks watching the grass grow. I was sore for weeks and went to the toilet at least 3 times a day. About 10 days after discharge I started driving again, locally at first and then getting a bit more ambitious in August when we took a few day trips to the coast and to the Cotswolds.

My abdominal scar healed completely in August when a bandage was no longer needed, a great psychological boost. In September I went back to work, part time at first building up to full time by November. Then at the end of November everything clicked back into place. The soreness went away and it no longer felt as though someone had stuck a knife into me, which had indeed been the case. At the end of November a new client in Switzerland called me to tell me about a new software project over there and would I be interested in joining the team. I said that I would be interested.

Meanwhile I had started a course of adjuvant chemotherapy at the end of August 2009 which finished in the following February. I must have taken about 500 Capcitabine pills in that period, the only side effect being the runs.

Between Xmas 2009 and New Year we made a short driving trip to Brittany, my first trip out of the UK for some months. In January 2010 I flew out to Zurich to start part time on the new project which became full-time from February. I still commute weekly from London to Zurich. I still get the runs and I can tell you that the toilets at Zurich airport are the cleanest in the world.  I could even write a Good Toilet Guide for what it's worth.

I would give pancreatic cancer sufferers the following advice:

  1. Give up alcohol entirely
  2. If you have not yet reached retirement age keep yourself busy at work. Give yourself plenty to do as cancer likes idleness.
  3. Eat well and take moderate amounts of exercise. I took up golf again and started winning matches with a modified backswing due to my scar, but which made the ball fly straighter.
  4. Having private medical insurance helps immeasurably as this gives you access to the top surgeons and oncologists.

April 2011