Research Involvement Network opportunity: Reducing the risk of missing pancreatic cancer on computerised tomography (X-ray) and magnetic resonance imaging body scans

Type of opportunity

Members of the Research Involvement Network are invited to contribute to discussion as part of a focus group taking place 2-3.30pm on Wednesday 30th June 2021. The purpose of the focus group is to give people affected by pancreatic cancer the opportunity to provide meaningful feedback and insight to the researchers leading the study. This is an important part of the research process and helps to ensure that the research being conducted is relevant to the needs of people affected by pancreatic cancer.

Focus groups will be conducted virtually, via Zoom videoconferencing and should last no longer than 1.5 hrs.

If you prefer not to take part in a focus group there is also an opportunity to provide written comments on this study- we will provide all of the information needed for this.

About the study

This team want to find out why computerised tomography (CT) X-ray or Magnetic Resonance Imaging (MRI) body scans miss pancreatic cancer in some people. Each year in the UK 10250 people develop pancreatic cancer. They estimate that at least 700 people each year (around 7% of people who develop pancreatic cancer) have a CT or MRI scan that fails to diagnose their cancer.

For the first time, the team will let local hospitals know as soon as a case of potentially missed cancer happens from linking national cancer and CT or MRI scan records. They will ask local hospitals to look at the case in detail, including reviewing the scan pictures, find the cause, and see what can be learned to prevent further similar cases locally and, by learning from people with missed pancreatic cancer in all hospitals, nationally in future.

Identifying missed pancreatic cancers on CT or MRI imaging will allow collection nationally of a large number of CT and MRI scan images to allow: training and teaching X-ray doctors on an important set of difficult images, to improve future reporting of scans and reduce the rate of missing pancreatic cancer on CT and MRI scans; and the future use of computerised artificial intelligence to examine the scan images to create new learning on how to diagnose cancer better in challenging circumstances.

The team are applying for national research funding called Research for Patient Benefit for this project in July 2021.

How will the study benefit people affected by pancreatic cancer?

Detailed analysis of people with bowel cancer following a bowel CT scan that does not find bowel cancer, suggests at least 75% of such cases are potentially preventable.

The team think that improving CT and MRI scanning through detailed analysis of cases of missed pancreatic cancer and sharing learning from the results will lead to the identification of more people with cancer at an earlier and more treatable stage and lead to more people being cured from pancreatic cancer.

Who is drafting this proposal and leading the focus group?

Dr Nigel Trudgill is a consultant gastroenterologist working in the West Midlands who specialises in the diagnosing of cancer, including pancreatic cancer.

When will this opportunity be taking place?

Please express your interest by no later than Tuesday 29th June 2021.

The focus group will take place 2-3.30pm on Wednesday 30th June 2021. This is also the deadline for written feedback.

Who can take up this opportunity?

This opportunity is aimed at anyone who has been affected by pancreatic cancer (any member of the Research Involvement Network).

What steps will be taken to ensure that information about participants is stored and used in compliance with the provisions outlined in the General Data Protection Regulation (GDPR)?

Data will be kept on a password protected computer. Any personal data will only be used for the purposes of this project. Focus groups will be recorded, and transcribed verbatim. Recordings will be deleted following transcription.

What next/who to contact:

Please send your expressions of interest and whether you would like to participate in the focus groups or complete written feedback to the Pancreatic Cancer UK Research Team.