Cancer and Society in the 21st Century: advise the study
Pancreatic Cancer UK's Research Involvement Network members are invited to provide feedback on a study which will explore personal experiences, views and feelings on being affected by cancer through interviews and observations. As part of the work we will be focusing on pancreatic cancer, particularly participation in research.
Title of this study: Cancer and Society in the 21st Century
Institution: University of Edinburgh
About the study: The Cancer and Society Team at the University of Edinburgh focus their research on how rapid developments in cancer research and care are changing what it’s like to be a cancer patient. This particular study will involve qualitative research – they will be exploring personal experiences, views and feelings through interviews and observations. As part of the work they will be focusing on pancreatic cancer, particularly participation in research.
Type of opportunity: Research Involvement Network members are invited to comment on the team’s research priorities, and are encouraged to advise the team on how they can ensure sensitivity to pancreatic cancer patients and family members when offering opportunitites to participate in our research.
When will this opportunity be taking place?: The research team are looking for comments from a small group of RIN members from January 2018.
What will RIN members be asked to do?: RIN member will be invited to discuss the research over email or phone with the Dr Emily Ross, and provide feedback and/or comment on the research, particularly on the questions below.
Who can take part?: Comments and feedback are welcome from RIN members who have been affected, as a patient or family member/carer, by pancreatic cancer.
Who is conducting the research?: Dr Emily Ross, as part of a team of 6 researchers at the Universities of Edinburgh and of Leeds
Who has reviewed the study?: The study has been reviewed by NHS research ethics committee, and the Universities of Edinburgh and Leeds research ethics committees. The research team works with two patient and public panels alongside their research, but are seeking involvement from those with experiences of pancreatic cancer specifically.
How will the study benefit people affected by pancreatic cancer?: The research team hope that their research will heighten awareness of pancreatic cancer within social scientific research; few sociological studies explore experiences of pancreatic cancer.
They also hope that the research will help clinicians understand experiences of participation in clinical trials, and what issues may be similar/different for those with pancreatic cancer when compared with other cancers. The team will look at participation in the Precision Panc project, to explore the hopes and expectations of patients and their families, and how the project is discussed and presented by clinicians. It is hoped that this will inform the delivery of information about participation in similar research and trials, in a way that is sensitive to patients’ understandings and expectations, in the future.
What next/who to contact: There is more information about the wider project on the team’s website. If you would like to volunteer in providing some feedback on the pancreatic cancer part of the study, please contact Dr Emily Ross, Research Fellow, The University of Edinburgh.
Alternatively, please contact Nile in the Pancreatic Cancer UK Research Team by email or by calling 020 3871 9995.