Help shape an application for funding focusing on nutrition and quality of life in patients with pancreatic cancer and their carers
Type of opportunity
Members of the Research Involvement Network are invited to contribute to discussion as part of a focus group aimed at understanding the issues and support received around nutrition for people with pancreatic cancer and how this can affect quality of life. Focus groups will be conducted virtually, via zoom and should last no longer than 90 minutes.
If you prefer not to take part in a focus group there is also an opportunity to complete a questionnaire on this topic.
About the study
The aim of this opportunity is to inform the funding proposal for a PhD project which will explore nutrition (including issues and support received) and quality of life over time in people with pancreatic cancer. If funded, the aim of the project will be to develop a nutrition support intervention for individuals with pancreatic cancer and their carers.
During the focus group, the initial project idea will be presented in more detail and the group will be asked to comment, as part of this there will also be an opportunity to share personal or loved ones experiences of nutritional support/ lack of nutritional support and how this impacted on quality of life. Insight from the Research Involvement Network at this early stage in the research will be used to help inform, shape and support this proposal before it is submitted for funding and will ultimately help to ensure that it focuses on an unmet need for people affected by pancreatic cancer.
Who is conducting the research?
Mrs Rose Maunsell, University of Southampton
When will this opportunity be taking place?
Please express your interest by no later than Friday 5th June 2020.
The focus group will be held in June 2020. Dates will be decided once participants have been confirmed. The deadline for returning the survey will be the 15th June 2020.
Who can take up this opportunity?
This opportunity is aimed at anyone who has been affected by pancreatic cancer.
What steps will be taken to ensure that information about participants is stored and used in compliance with the provisions outlined in the General Data Protection Regulation (GDPR)?
Contact details will be kept on a password protected computer with access only to Rose Maunsell. No other personal information will be collected.
The focus groups will be recorded and notes made. Recordings will be stored on a password protected computer with access only to Rose Maunsell and Pancreatic Cancer UK Research Team. Recordings will be deleted once notes are finalised. Any personal or identifiable details shared within the interview will be taken out when notes are made. The recordings will only be used for the purposes of this project, this may include the use of anonymised quotes.
How will the study benefit people affected by pancreatic cancer?
If funded, the overall aim of the PhD project will be to develop a nutrition support intervention for people with pancreatic cancer and their caregivers. The background to this is that patients with pancreatic cancer experience significant nutritional issues, which may negatively impact upon survival and quality of life. By developing an intervention to support patients with pancreatic cancer to self-manage nutritional issues and seek appropriate support as needed, quality of life and other clinical outcomes may be improved.
What next/who to contact:
Please email your expressions of interest to Rose Maunsell, these should briefly detail how you have been affected by pancreatic cancer and whether you would like to participate in the focus groups or complete the survey.