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Help to inform the background of a funding application aiming to understand more about the risk of pancreatic cystic lesions progressing into pancreatic cancer

Type of opportunity

Members of the Research Involvement Network are invited to contribute to discussion as part of a focus group aimed at evaluating views on pancreatic cystic lesions: their investigation, diagnosis, surveillance and management.

Focus groups will be conducted virtually, via zoom and should last no longer than 90 minutes. No prior knowledge or experience of pancreatic cystic lesions is required to get involved with this opportunity.

If you prefer not to take part in a focus group there is also an opportunity to complete a questionnaire on this topic.

About the study

Different types of cystic lesions can affect the pancreas. A cyst is a sac filled with fluid. These cysts are usually not cancerous (benign) but some can become cancerous (malignant).

This funding proposal aims to use new analytical tools (spatial transcriptomics) to analyse tissue from pancreatic cystic lesions and compare these with pancreatic cancer tissue. This may help us to identify which cystic lesions are at a higher risk of progressing into pancreatic cancer and therefore may require more investigation and/or resection (surgery).

The data gathered from this small initial survey / focus group with the Research Involvement Network will help to form the background of a proposal for the above study and inform the researchers of its potential relevance and importance to people with pancreatic cancer and your views on the ongoing management of patients with pancreatic cystic lesions.

Who is conducting the research?

Andrew J. Cameron, Honorary Clinical Lecturer, University of Glasgow

When will this opportunity be taking place?

Please express your interest if you wish to attend the focus group by no later than Thursday 6th August 2020.

The focus group will be held in August 2020. Dates will be decided once participants have been confirmed.

The deadline for returning the survey is Thursday 20th August 2020.

Who can take up this opportunity?

This opportunity is aimed at anyone who has been affected by pancreatic cancer or a pancreatic cystic lesion.

What steps will be taken to ensure that information about participants is stored and used in compliance with the provisions outlined in the General Data Protection Regulation (GDPR)?

The focus groups will be recorded and notes made. Recordings and survey results will be stored on a password protected computer with access only to Andrew Cameron and Pancreatic Cancer UK Research Team. Recordings will be deleted once notes are finalised. Any personal or identifiable details shared within the interview will be taken out when notes are made.  The recordings will only be used for the purposes of this project, this may include the use of anonymised quotes.

How will the study benefit people affected by pancreatic cancer?

If funded, it is hoped that this research may allow the accurate identification of patients who have a cystic lesion at high risk of progression to pancreatic cancer. The findings may help with our understanding  of which patients with pancreatic cystic lesions require further investigation and surveillance to ensure that if there is any progression into pancreatic cancer, it is identified at a very early stage and can be treated more effectively.

What next/who to contact:

Please email your expressions of interest for the focus group to the Pancreatic Cancer UK Research Team, these should briefly detail your experience of pancreatic cancer or pancreatic cystic lesions. 

Alternatively, you can complete the online survey