Read our booklet about the care you should expect
You can download our booklet, The care you should expect and receive: Patient Charter.
You can also order a printed copy.
The care you should expect and receive: Patient charter
This information explains the standards of care everybody with pancreatic cancer should have while they are being diagnosed and treated.
Read our guide to the care you should expect and receive
- The care you should expect and receive: Patient charter
- 1. What to expect from your pancreatic cancer care: Assessment and treatment by a specialist team
- 2. What to expect from your pancreatic cancer care: A clear explanation of your diagnosis and treatment options
- 3. What to expect from your pancreatic cancer care: Timely treatment and proper management of symptoms and side effects
- 4. What to expect from your pancreatic cancer care: Compassion, dignity and respect, as well as practical and emotional support
- 5. What to expect from your pancreatic cancer care: Information and support for your family
- 6. What to expect from your pancreatic cancer care: Access to well-coordinated end of life care
If you have just been diagnosed with pancreatic cancer you may feel there is a lot to take in. Your diagnosis can have a huge impact on you and your family and friends. Your medical team should explain your diagnosis and treatment options, and involve you in discussions about your care.
There are guidelines for cancer care across the UK. For example, the National Institute for Health and Care Excellence (NICE) have produced guidelines for pancreatic cancer care in England, Wales and Northern Ireland. Doctors don’t have to follow these guidelines in all situations, but they must take them into account.
Use the information in this section as a guide to what you should expect. It can help you talk to your doctors and nurses about your treatment and care. And you can use this to speak to your doctors if you feel you are not getting the care you should have.
Order the booklet
Everyone with pancreatic cancer should have:
- Assessment and treatment by a specialist team of health professionals
- A clear explanation of your diagnosis, what it means and treatment options
- Timely treatment that is individual to you, and proper management of symptoms and side effects
- Compassion, dignity and respect as well as practical and emotional support
- Information and support for your family
- Access to well-coordinated end of life care, if needed
Questions about your care?
If you have any questions about the care you should expect, talk to your doctor or nurse. You can also talk to our specialist nurses on our Support Line.
Updated August 2020
Review Date March 2024
The care you should expect and receive: Patient Charter is endorsed by:
