The European Registry of Hereditary Pancreatitis and Familial Pancreatic Cancer (EUROPAC) is looking at two types of families – those with familial pancreatic cancer and those with hereditary pancreatitis. Researchers hope to learn more about the genetic causes of pancreatic cancer. Being able to identify people at high risk may also help researchers to develop new screening programmes to detect pancreatic cancer at an early stage.
People from families with familial pancreatic cancer can join the study by completing questionnaires and giving a blood sample. The blood is tested by researchers to try to identify which genes may cause familial pancreatic cancer.
People can choose whether or not they are told about results that are relevant to their family. If a gene that causes pancreatic cancer is found in a family, unaffected family members will be offered genetic counselling.
Secondary screening study
The EUROPAC secondary screening is aimed at people who are at increased risk of pancreatic cancer, following an assessment.
People with hereditary pancreatitis can join the study by completing questionnaires and giving a blood sample. The blood is taken after talking to an expert in pancreatic diseases and sometimes a geneticist (a specialist in genes) for genetic counselling. The blood may be tested for faults in genes known to cause pancreatic disease.
People who take part can choose whether or not to be told about any results that are relevant to their family. If a faulty gene is found, family members who don’t have pancreatitis can have genetic counselling and genetic tests if appropriate.
How do I get in touch with EUROPAC?
You can also ask your GP or specialist to refer you. You have to be referred to take part in the secondary screening study.
Published October 2015
Review date October 2017