6. What to expect from your pancreatic cancer care: Access to well-coordinated end of life care, if needed
It is important that people with pancreatic cancer who are approaching the end of their life receive the right support and management of symptoms.
You should receive well-coordinated palliative care. Palliative care aims to relieve any symptoms you may have, including pain, nausea and fatigue, as well as making sure you get the emotional, physical, practical and spiritual support you need.
Your palliative care should be properly coordinated and provided by specialist professionals. Your hospital team or GP can refer you to your local palliative care services, so that you can get a full range of support and services at home. As part of this care, you should be given the opportunity and support needed to develop a care plan based on what matters to you.
Who provides your care after you leave hospital will depend on your needs and local services, but may include your GP, a district nurse, your local hospice or a specialist palliative care team. Any end of life care you have should be properly arranged and coordinated, so that you know what to expect and have the support you need.
Read more on planning your care at the end of life.
You should have access to specialist palliative care advice when you need it. You should be given a key contact you can reach any time you need help or advice. Speak to your doctor or nurse about local palliative care services and how to access them. You may also have access to a hospice helpline.
Your family should also be given information about services where they can access support.
Read more about the care you should expect and receive:
- Assessment and treatment by a specialist team of health professionals
- A clear explanation of your diagnosis, what it means and treatment options
- Timely treatment that is individual to you, and proper management of symptoms and side effects
- Compassion, dignity and respect as well as practical and emotional support
- Information and support for your family
Updated August 2018
Review Date August 2020