Login to Pancreatic Cancer UK

Our community spoke, and we’re listening

Posted by: Comms 23 June 2020

In May 2020, we asked for the views of our community on our work and asked them what concerned them most about pancreatic cancer during the pandemic.

Thank you to the over 13,000 people who responded to this recent survey. You’re helping us to make decisions on what to prioritise, now and in the future.

Here’s what we found out

Copy Of Stats Survey Non 88 DiagnosisThat’s why as the pandemic continues to put pressure on our healthcare system,

  • we’re continuing to support people with pancreatic cancer through our Support Line and information. We’re expanding the resources hub on our website, with 36,000 people having already accessed our information on Coronavirus.
  • through our Pancreatic Cancer during COVID-19 (PCC) Network webinars we’re bringing together UK clinicians to share ideas and solutions about how they can ensure people with pancreatic cancer continue to get the treatment they need.

“The webinars and network is really progressing at pace and I cannot believe how far they’ve come. The sheer number of participants and breadth of uptake from the UK is incredible. I think it is heartening to see the community galvanised to face this challenge. Great work Pancreatic Cancer UK.”

Ganesh Radhakrishna
Consultant Clinical Oncologist, The Christie NHS Foundation Trust

Copy Of Stats Survey Non 77 NhsThat’s why as the NHS begins to recover from the pandemic,

  • we’re listening to the experiences of those affected, so we can speak up and represent our community. We’ve heard from many people – like Stuart, who shared a video with us, documenting how he’s coping with pancreatic cancer during coronavirus.
  • we’re making sure our voices are being heard at the highest levels of government and the NHS. This includes representing our community in regular discussions with policy-makers and government bodies across the nations.
  • we’ll be calling for the treatment of people with pancreatic cancer to be prioritised, and working harder than ever to give them the chance of a better future because pancreatic cancer can’t afford any more setbacks.

Stats Survey Non 76 Raising AwarenessThat’s why:

  • we’ve been supporting the NHS’ ‘Help us to help you’ campaign encouraging people to get help from the NHS if they need it during the response to coronavirus.
  • via our digital channels we’ve shared messaging on symptoms and tailored video content from Emma, one our specialist nurses, on the importance of still visiting your GP during the pandemic.

Copy Of Stats 75 Non Ensure Research ContinuesThat’s why, right now,

  • we’re supporting researchers to continue their work outside the lab, such as analysing research findings via computer-based techniques. They can also access our online hub with training resources and webinars
  • through our PCC Network, we’re holding webinars on new research findings to discuss what they mean and what the next stage of research will be.
  • we’ve partnered with other research charities to call on the Government to protect research roles through its job retention scheme, and to support the recovery of medical research through dedicated funding.  
  • we’re involved in discussions with the clinical research community about how to restart clinical trials quickly and have shared evidence with the Government about what needs to happen to make this possible.  

It’s vital that we’re able to accelerate research as quickly and safely as possible after the pandemic.

Thank you to everyone who shared their views. By doing so you are helping us in our mission to ensure pancreatic cancer is not forgotten in this pandemic.