Investing in the future: increasing our reach
The services we currently provide via telephone and email support, our Discussion Forum and information resources are highly valued by patients and carers alike. We know this because in our last annual survey, 100% of respondents were very satisfied with the Support Line service and would recommend it to others.
We also know from feedback from our patient and carer experts that one of the things that people value most about what we do is bringing people affected by pancreatic cancer – whether they are patients, family members or carers - together so that they can support each other. Because of this, we were delighted to find that the patient and carer support groups that we’ve been helping to establish across the UK have been a run away success!
To date, our only concern has been that we know there are many more people that could benefit from our services and these local support groups, but they may not even know we exist.
Starting this Autumn we will be investing £1.6million over five years, rolling out a new exciting service model that will see us put together teams of Specialist Nurses and Community Involvement Co-ordinators across the 4-nations. We will run two pilots, one in the Midlands and one in Northern Ireland that will help us develop closer, local relationships with the NHS and most importantly with patients, their families and carers.
This will enable us to establish even more support groups for you, run local newly-diagnosed patient information days, raise awareness of pancreatic cancer and expand upon our already successful programme of nurse study days. Over the course of the next few years we hope to have six such teams in place across the UK. We are hugely excited by these plans and the opportunity to reach so many more people affected by pancreatic cancer.
Recently our current Support Group network, which we have helped to develop across the UK has been growing fairly rapidly. We do not run the Support Groups, but we help people to set them up in their local areas, attending meetings when we can, supplying information literature, as well as providing a small start-up grant. We are also there every step of the way to offer guidance and support in order to get them off the ground.
We know how vital Support Groups are but we also know how much time and energy they take to run, so we are here whenever you should need us, and we are of course always happy to promote them on our website and social networks.
The network of groups that we helped to set up and now support has grown considerably over the past few years. There are seven active groups in England and we are also very excited to announce that the first Support Group meetings in Wales and Scotland will be taking place later this year. Check Support Groups page for more details.
Perhaps you’d like to start a support group in your local area? We’d be delighted to discuss this with you. Please email firstname.lastname@example.org and we can send you some information and answer any questions you might have.
The current active groups in England are located in: Bristol, Dorset, Leeds, Leicester, London, Sussex and West Midlands. We announce new meetings on Facebook and Twitter, so follow us there to ensure you don't miss a chance to connect with your local group.