Promoting Innovative Practice (PIP)
Our ‘Promoting Innovative Practice - PIP’ work seeks to drive up standards of pancreatic cancer patient care across the UK.
We have started this work by launching a new pancreatic cancer Patient Charter. It sets a baseline standard of care that pancreatic cancer patients should expect to receive in the UK.
Unfortunately, we too often hear about variations in care, and that patients are not receiving care that meets these standards. We hope our Patient Charter will help make sure people with pancreatic cancer receive more consistent levels of treatment and care across the country, by empowering them and their carers to demand the level of care they are entitled to.
Looking to the future, our ‘Promoting Innovative Practice’ campaign will produce other pieces of work designed to raise the level of patient care and treatment across the UK.
Over the next couple of years, we will work closely with the pancreatic cancer community, patients, carers, clinicians and other health professionals to identify and define innovative care practices to improve patients’ lives and we will call for their adoption across UK.
Why do we need a Promoting Innovative Practice campaign?
We know that pancreatic cancer patients too often record receiving lower levels of care than patients of other cancer types. Our own Patient and Carer Survey carried out in May 2015 also highlighted issues such as:
- Poor communication of diagnosis: 37% of respondents reported that they did not feel their diagnosis had been communicated sympathetically.
- Privacy: shockingly, 28% of patients were given their diagnosis on a hospital ward with other patients nearby, and nearly 5% of patients were given the news over the telephone.
- Support: the same survey saw 53% of respondents say they or their family member were not offered support or time to digest the news after the diagnosis was communicated.
We also know from running our Support Line service that there are often delays to patients starting treatment once they have been diagnosed. We also know that there often isn’t good co-ordination with supportive and palliative care services, leading to delays in patients accessing support to manage symptoms.
It is these and other shortcomings that our Promoting Innovative Practice campaign will seek to address.