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Demand Survival Now - the national plan

Demand Survival Now - the national plan

Our manifesto for pancreatic cancer

There’s no time to waste. Pancreatic cancer has been absent from cancer strategies and plans far too often. That’s why pancreatic cancer survival has barely changed for decades and remains the deadliest common cancer. We call upon the next UK Government and governments around the country to commit to these changes.

Download the Demand Survival Now report (PDF)

Other cancers have benefited from targeted government awareness initiatives, optimal diagnostic and treatment pathways, audits, and directed research strategies. But pancreatic cancer has been left behind. Not only has survival stagnated, the survival gap between pancreatic cancer and other common cancers has doubled over the last 50 years.

Survival rate chartChart showing the 'survival gap' between pancreatic cancer and other cancers.


Change is possible - here's how

When governments and the clinical community come together to prioritise less survivable and historically neglected cancers, survival can be transformed. 

Lung cancer: a case study

Lungs
Over the last 20 years, lung cancer has seen a succession of national government and clinical initiatives that have started to transform survival, more than doubling five-year survival from 7% to 16%.

The initiatives included: 
  • In 2005, the first National Lung Cancer Audit kick-started the spread of national improvements in England so that the number of surgeries more than doubled from 3,000 in 2005 to over 7,000 in 2016.
     
  • In 2017, the National Optimal Lung Cancer Pathway was published, providing a road map for best care and treatment for people with lung cancer. 
     
  • In 2019, the NHS long-term plan set out plans to implement targeted lung cancer screening, as a part of the ambition to diagnose 75% of cancers at an early stage.
The time for pancreatic cancer is now.
 

Download the Demand Survival Now report (PDF)


A national plan

A national plan should focus on three key areas to make pancreatic cancer a survivable disease: research, quality of care, and public awareness.

Research

Successive governments, strategies and plans have consistently missed the opportunity to target the necessary research investment into pancreatic cancer that is required to transform survival.
 
1Research (1)
 
Now is the time for investment into pancreatic cancer research. A £25 million annual investment into pancreatic cancer would start to change the survival odds and reverse the historic legacy of underfunding. This research investment would signal strategic intent, accelerate high quality early diagnosis and treatment research, and build the infrastructure to establish leadership and collaboration in the pancreatic cancer community. It could also fund early career fellowships to attract and retain the best talent.
 

Download the Demand Survival Now report (PDF)

Transform treatment and care

For the 10,000 people diagnosed with pancreatic cancer each year there is a lack of consistency in the treatment that they receive and no guarantee they will experience the nationally recommended best standard of care.
 
2Care (1)
 
There is no assurance they will have access to the fast track pathways or optimal care models that have been shown to improve survival. The standard of care in the UK is falling behind the rest of Europe, with lower early stage diagnosis, less people receiving surgery and one of the worst survival outcomes – with five-year survival ranking 29th out of 33 countries. More people with pancreatic cancer would survive or survive longer if everyone with pancreatic cancer received the optimal standard of care.

491160 Pcuk Dsn Sm Infographics 04  

Download the Demand Survival Now report (PDF)

Transform public awareness
Pancreatic cancer has vague and non-specific symptoms, it lacks a simple test for detection and there is poor public awareness of the symptoms. As a result, it remains exceptionally difficult to diagnose at an early stage, making pancreatic cancer almost impossible to treat and survive.
 
3Aware (1)
 
Part of the continued legacy of neglect includes the absence of a national public campaign for pancreatic cancer symptoms, while there have been other national campaigns for lung cancer, bowel cancer, bladder cancer and breast cancer.
 
A dedicated awareness campaign could enable more people with pancreatic cancer to be identified at an earlier stage where treatment is more likely. This could help to transform the odds of survival.
 

Download the Demand Survival Now report (PDF)

We urge every government across the UK to produce a national plan to transform survival of pancreatic cancer – a plan that invests in research; transforms care and treatment; and improves  public awareness of symptoms. 
 

Stand with us. Sign the petition: 
DemandSurvivalNow.org.uk 

Together, let’s beat the deadliest cancer.

Read Lynne's story and find out more about the Demand Survival Now campaign