The Big Picture - Pancreatic Cancer UK’s patient registry
How you can help build the biggest ever picture of pancreatic cancer diagnosis, treatment and care
Join us to find out more about The Big Picture, Pancreatic Cancer UK’s Patient Registry.
Existing patient studies often fail to capture people with pancreatic cancer and therefore we’ve never had a complete picture of pancreatic cancer care. In order to improve outcomes for pancreatic cancer, we launched the patient registry earlier this year with the aim to understand people’s real experiences of diagnosis, treatment and care.
People who have been diagnosed with pancreatic cancer, or their loved ones, can add their experiences to The Big Picture by completing our online survey. Since it launched in May, hundreds of people have already added their experiences, which will be used to influence and inform Governments and NHS leaders across the UK about where things need to improve.
In this Webinar, we will take a look at The Big Picture, what it is, why we need it and how the data will be used – including a first look at some of the data we have collected do far.
We’ll also hear from healthcare professionals about their experiences of referring patients, and how they hope to use the data we collect in their work.
Finally, we’ll discuss how we can support you to signpost your patients to The Big Picture, and how together we can build the evidence we need to improve the lives of people facing pancreatic cancer.
Agenda
- 09.00 – 09.05: Welcome – Alfie Bailey-Bearfield, Head of Policy & Influencing, Pancreatic Cancer UK
- 09.05 – 09.20: How we can all help build the biggest ever picture of pancreatic cancer experience and care – Henry Ferguson-Gow, Health Intelligence Manager and Lynne McCallum, Specialist Pancreatic Cancer Nurse, Pancreatic Cancer UK
- 09.20 – 09.30: Q&A
- 09.30: Close
Why attend?
This session will help you to feel confident signposting your patients to The Big Picture and highlight the importance of collecting this type of data. It will also give you valuable insight into how, in the future, you will be able to use the evidence we collect to find out more about pancreatic cancer care in your local area and inform improvements.
Who is this session for?
This session is suitable for health professionals working in pancreatic cancer, as well as Cancer Alliances, local health bodies, NHS representatives and research groups.
Our speakers
Chair
- Alfie Bailey-Bearfield, Head of Policy & Influencing, Pancreatic Cancer UK
Speakers
- Henry Ferguson-Gow, Health Intelligence Manager, Pancreatic Cancer UK
- Lynne McCallum, Specialist Pancreatic Cancer Nurse, Pancreatic Cancer UK
FAQs
What platform will this event be hosted on?
This event will be held on Zoom Webinar. After you book, you will receive an email via Zoom with the joining details. You can join on a computer, laptop, tablet or smartphone – any device with an internet connection.
If you don’t have access to the internet, you can also dial in from a standard telephone.
Will I receive a certificate of attendance?
As this is an informational event rather than educational, there won’t be an attendance certificate or CPD available for this event.
Will the event be recorded?
Yes. After the event, we will email all registrants with a link to the recording and presentation slides. So if you’re unable to join the live session, you will be able to catch up at a later date. For the best experience, we recommend joining live.
How do I register?
All you need to do is click the link below and fill in the Zoom registration form. You’ll then receive an automatic email via Zoom with the joining details.
If you have any questions, please don’t hesitate to get in touch with us at hpnetwork@pancreaticcancer.org.uk
