Other sources of information and support

Action Cancer

Support for people with cancer in Northern Ireland.

Black Women Rising

Offers vital help, information and practical advice for people of colour who have been diagnosed with cancer.

Cancer Black Care

Provides support for all those living with and affect by cancer, with an emphasis on black people and people of colour.

Cancer Focus NI

Care and support for people affected by cancer and their families in Northern Ireland.

Cancer Research UK

Information for anyone affected by cancer.

Hospice UK

Information and a database of hospices in the UK.

Look Good Feel Better

Provide wellbeing workshops led by beauty and health expert volunteers that aim to help people feel good, look better and more like themselves again.

Macmillan Cancer Support

Practical, medical and financial support for anyone affected by cancer, including families.

Maggie’s

Centres around the UK and online offering free practical, emotional and social support for anyone affected by cancer.

Marie Curie

Care and support for people living with a terminal illness, and their families, including provision of nurses and hospices.

NICan (Northern Ireland Cancer Network)

Information about services in Northern Ireland to support people with cancer and their families.

OUTpatients

Supporting and advocating for LGBTIQ+ communities affected by cancer. They also provide support for partners and carers.

Samaritans

Provides a 24 hour helpline for anyone struggling to cope. You do not have to be suicidal to use this service.

Something to look forward to

Support people with cancer and their families by providing access to a variety of gifts such as tickets to attractions, restaurant meals, hotel stays and beauty treatments. They have gifts available specifically for people with pancreatic cancer.

Sue Ryder

Support for people approaching the end of life or living with grief.

Tenovus

Advice and support for everyone affected by cancer in Wales.

British Association of Counselling and Psychotherapy

Information about counselling and database of registered therapists.

British Acupuncture Council

Self-regulatory body for acupuncture therapists in the UK. Provide a list of qualified acupuncturists.

British Pain Society

Information on pain clinics, pain management programmes and other ways of managing pain.

British Society of Clinical Hypnosis

Information about choosing a hypnotherapist and a database of registered therapists.

Cancer Hair Care

Support with cancer treatment related hair loss and hair care. Provide services tailored to all genders, ages, ethnicities and the LGBTQI+ community.

Complementary and Natural Healthcare Council

Information about complementary therapies and a register of therapists.

Diabetes UK

Information on managing different types of diabetes.

Electronic Medicines Compendium

Patient information leaflets for all licensed medicines.

MIND

Provide information and support to people with a mental health problem and their families.

Pain Association Scotland

Provides professionally led pain management to people with long-term pain in Scotland.

Pain Concern

Information and support for people with pain, and their families.

Carers Trust

Support for carers, and a directory of local care services.

Carers UK

Information, advice, and support for carers, including benefits checks, and advice on financial and practical issues.

Fruit Fly Collective

Information and support for children affected by cancer.

Winston’s Wish

Provide support to children and young people who have been bereaved and those who care for them.

There are organisations that can help people affected by pancreatic cancer support and talk to children and teenagers about cancer.

Advice Direct Scotland

Provide information and advice to people in Scotland on a range of issues, including financial and work.

Age UK

Provide information and advice to older people, including about work, money and care, as well as support to help people stay independent.

Beacon

Provide support and information to people and families having the NHS Continuing Healthcare assessment.

British Red Cross

A range of support including lending medical equipment, support at home and help with transport.

Citizens Advice

Information and advice on issues including work, benefits, healthcare, patient rights and information for carers.

Department for Transport

Information on drugs and driving, including painkillers.

GOV.UK

Provides information about government services, including information about benefits, transport, money and guidelines for hospital parking.

Health in Wales

Information about the NHS in Wales, and a directory of local services.

Healthwatch

Advice and support for people using health services in England, including help with making a complaint.

Independent Sector Complaints Adjudication Service (ISCAS)

Provides independent decisions about complaints for the private healthcare sector.

Living Made Easy

Free advice about equipment to help with daily living.

Llais

Information and support in making a complaint about health and social services in Wales.

mygov.scot

Information about public services in Scotland, including health and social care services.

National Institute for Health and Care Excellence (NICE)

NICE have guidelines for health professionals diagnosing and caring for people with pancreatic cancer. Read more at: nice.org.uk/guidance/ng85

NHS 24

Digital health and care services in Scotland.

NHS Inform

Provides information about different health conditions and living well, and local services in Scotland.

NHS Website

Information about health conditions, living well, care, and local services in England.

NHS 111 Wales

Health information in Wales, including local services.

nidirect

Information about local services in Northern Ireland including health services, and information for carers.

Turn2Us

Helps people in financial hardship access benefits, charitable grants and support services.

AMMF – The Cholangiocarcinoma Charity

Provide information and support to people with bile duct cancer.

Association for Multiple Endocrine Neoplasia Disorders (AMEND)

Offers information and support for people with MEN1.

BRCA Umbrella

Provide practical and emotional support to men and women with a fault in BRCA gene or are at high risk of BRCA related cancers. This includes an online support forum and information.

Neuroendocrine Cancer UK

Information and support for people with neuroendocrine cancers (neuroendocrine tumours or NETs).

VHL UK/Ireland

Provide information about support for people with von Hippel-Lindau syndrome.

There is support available to help you deal with how you feel after your loved one has died. We have information and a list of organisations who can provide bereavement support on our website page, Coping with loss.

There are organisations that provide information and support to people nearing the end of their life, and their families.

There are also organisations that can help people affected by pancreatic cancer support and talk to children and teenagers about cancer.