Other sources of information and support

There are lots of other organisations that can provide information and support to people with pancreatic cancer and their family and friends.

On this page we share organisations that can help you cope with pancreatic cancer and the side effects and symptoms. There are organisations providing practical information and support, such as information on finances or work, and organisations that support family members. There are also organisatons that provide bereavement support.

Information and support for people with cancer

Action Cancer

Provide early cancer prevention, detection and support services in Northern Ireland.

Black Women Rising

Offers vital help, information and practical advice for people of colour who have been diagnosed with cancer.

Cancer Black Care

Provides support for all those living with and affect by cancer, with an emphasis on black people and people of colour.

Cancer Focus NI

Provide support services to people with cancer and their families in Northern Ireland.

Cancer Research UK

Information for anyone affected by cancer.

Elizabeth Coteman Fund

Provide grants for people with pancreatic cancer who are struggling financially, for equipment and respite. Provides support and friendship to those affected by pancreatic cancer.


Personal experiences presented in written, audio and video formats, including people talking about pancreatic cancer.

Hospice UK

Information about hospices, and a database of hospices in the UK.

Look Good Feel Better

Provide wellbeing workshops led by beauty and health expert volunteers that aim to help people feel good, look better and more like themselves again.

Macmillan Cancer Support

Provide practical, medical and financial support for anyone affected by cancer.


Centres around the UK and online offer free practical, emotional and social support for anyone affected by cancer.

Marie Curie

Care and support for people living with a terminal illness, and their families, including provision of nurses and hospices.

NICan (Northern Ireland Cancer Network) Survivorship website

Information about services in Northern Ireland to support people with cancer and their families.


Supporting and advocating for LGBTIQ+ communities affected by cancer. They also provide support for partners and carers.

Something to look forward to

Support people with cancer and their families by providing access to a variety gifts such as tickets to attractions, restaurant meals, hotel stays and beauty treatments. They have gifts available specifically for people with pancreatic cancer.


Provide support, information and services to people with cancer in Wales.

Information and support for managing symptoms and coping with pancreatic cancer

Be Mindful

A website from the Mental Health Foundation, offering an online mindfulness course and details of teachers.

British Association of Counselling and Psychotherapy

Information about counselling and database of registered therapists.

British Acupuncture Council

Self-regulatory body for acupuncture therapists in the UK. Provide a list of qualified acupuncturists.

British Pain Society

Information on pain clinics, pain management programmes and other ways of managing pain.

British Society of Clinical Hypnosis

Information about choosing a hypnotherapist and a database of registered therapists.

Complementary and Natural Healthcare Council

Information about complementary therapies and a register of therapists.

Diabetes UK

Information on managing different types of diabetes.

Electronic Medicines Compendium

Patient information leaflets for all licensed medicines.


Provide information and support to people with a mental health problem and their families.

Pain Association Scotland

Provides professionally led pain management to people with long-term pain in Scotland.

Pain Concern

Information and support for people with pain, and their families.

Read about managing symptoms and side effects

Organisations for families and carers

Carer’s Trust

Information and support for carers, and a directory of local care services.

Carer’s UK

Information, advice, and support for carers, including benefits checks, and advice on financial and practical issues.

Fruit Fly Collective

Provide information and support for families affected by cancer.


Website for teenagers with a parent with cancer. It provides information about cancer, real life stories, and support.

Winston’s Wish

Support for children with a close family member who has a serious illness, and children who have been bereaved.

There are organisations that can help people affected by pancreatic cancer support and talk to children and teenagers about cancer.

Read our information for family members

Information on practical issues and health services

Advice Direct Scotland

Provide information and advice to people in Scotland on a range of issues, including financial and work.

Age UK

Provide information and advice to older people, including about work, money and care, as well as support to help people stay independent.


Provide support and information to people and families navigating the NHS Continuing Healthcare assessment.

British Red Cross

Provide a range of support including lending medical equipment, support at home and help with transport.

Citizens Advice

Provide information and advice on a range of issues including work, benefits, healthcare, patient rights and information for carers.

Department for Transport

For information about drugs and driving, including medicines for pain relief.

Disabled Living Foundation

Provide free and impartial information and advice about equipment to help with daily living.


Provide information about government services, including information about benefits, transport, money and guidelines for hospital parking.

Health in Wales

Information about the NHS in Wales, and a directory of local services.


Supports people in England to provide feedback about health and care services.

Independent Sector Complaints Adjudication Service (ISCAS)

Recognised independent adjudication services of complaints for the private healthcare sector.


Advice and support for people using health and social services in Wales – including support in making a complaint.


Information about public services in Scotland, including health and social care services.

National Institute for Health and Care Excellence (NICE)

NICE produce guidelines that make recommendations for the NHS care of people with different health conditions. The guidelines are based on the best available evidence, and aim to improve the quality of healthcare.

NHS 24

Offering digital health and care services in Scotland, including the Living Life phone support service.

NHS Inform

Provide information about different health conditions and living well, and local services in Scotland.

NHS Website

Provide information about health conditions, living well, care, and local services in England.

NHS 111 Wales

Health information in Wales, including local services.


Information about local services in Northern Ireland, including health services and information and support for carers.


Helps people in financial hardship access benefits, charitable grants and support services.

Read about dealing with daily life with pancreatic cancer

Organisations for people with other types of pancreatic cancer and hereditary pancreatic cancers

AMMF – The Cholangiocarcinoma Charity

Provide information and support to people with bile duct cancer.

Association for Multiple Endocrine Neoplasia Disorders (AMEND)

Offers information and support for people with MEN1.

BRCA Umbrella

Provide practical and emotional support to men and women with a fault in BRCA gene or are at high risk of BRCA related cancers. This includes an online support forum and information.

Neuroendocrine Cancer UK

Information and support for people with neuroendocrine tumours (NETs).

VHL UK/Ireland

Provide information about support for people with von Hippel-Lindau syndrome.

Read about different types of pancreatic cancer

Bereavement support

There is support available to help you deal with how you feel after your loved one has died. We have information and a list of organisations who can provide bereavement support on our website page, Coping with loss.

Read our information on coping with loss

Other organisations

There are organisations that provide information and support to people nearing the end of their life, and their families.

There are also organisations that can help people affected by pancreatic cancer support and talk to children and teenagers about cancer.

Published December 2022

To be reviewed December 2025