Other sources of information and support

There are lots of other organisations that can provide information and support to people with pancreatic cancer and their family and friends.

On this page we share organisations that can help you cope with pancreatic cancer and the side effects and symptoms. There are organisations providing practical information and support, such as information on finances or work, and organisations that support family members. There are also organisatons that provide bereavement support.

Information and support for people with cancer

Cancer Research UK

Helpline: 0808 800 4040 (Mon-Fri 9am-5pm)
Information for anyone affected by cancer.

Elizabeth Coteman Fund

Tel: 01223 782171
Founded in memory of Elizabeth Coteman, an outstanding wife and mother, who died from pancreatic cancer in 2010, to provide support and friendship to those experiencing pancreatic cancer, and to promote and support the importance of research. Provide grants for expenses to take part in a clinical trial, and grants for people with pancreatic cancer who are struggling financially, for equipment, and for respite.

Healthtalk.org

Personal experiences presented in written, audio and video formats, including people talking about pancreatic cancer.

Hospice UK

Tel: 020 7520 8200
Information about hospices, and a database of hospices in the UK.

Macmillan Cancer Support

Support Line: 0808 808 00 00 (7 days a week, 8am-8pm)
Provides practical, medical and financial support for anyone affected by cancer, including family members.

Maggie’s Centres

Tel: 0300 123 1801
Centres around the UK and online offer free practical, emotional and social support for anyone affected by cancer.

Marie Curie

Support line: 0800 090 2309 (Mon-Fri 8am-6pm, Sat 11am-5pm)
Provides care and support to people with a terminal illness and their families, including nurses and hospices.

My pancreas app

This app is free to download on iPhones and iPads for patients who might be having tests or treatment for pancreatic cancer, and their carers. It explains what pancreatic cancer is, and the tests treatments you may have, as well as how to manage diet problems.

NICan (Northern Ireland Cancer Network) Survivorship website

Information about services in Northern Ireland to support people with cancer and their families.

Something to look forward to

Charity supporting people with cancer and their families by providing access to a variety gifts. Find anything from tickets to events and attractions, restaurant meals, hotel stays, beauty treatments and more. They have gifts available specifically for people with pancreatic cancer.

Information and support for managing symptoms and coping with pancreatic cancer

Be Mindful

A website from the Mental Health Foundation, offering an online mindfulness course and details of teachers.

British Association of Counselling and Psychotherapy

Tel: 01455 883300 (Mon-Fri 9am-5pm)
Information about counselling and database of registered therapists.

British Acupuncture Council

Tel: 020 8735 0400 Fri 9am-5pm)
Self-regulatory body for acupuncture therapists in the UK. Provide a list of qualified acupuncturists.

British Pain Society

Information on pain clinics, pain management programmes and other ways of managing pain.

British Society of Clinical Hypnosis

Tel: 01262 403 103
Information about choosing a hypnotherapist and a database of registered therapists.

Complementary and Natural Healthcare Council

Tel: 020 3668 0406 (Mon-Fri 9.30am-5.30pm)
Information about complementary therapies, and a register of therapists.

Diabetes UK

Helpline: 0345 123 2399 (Mon-Fri 9am-6pm)
Information on managing different types of diabetes.

Electronic Medicines Compendium

Patient information leaflets for all licensed medicines.

Pain Association Scotland

Tel: 0800 783 6059 (Mon-Fri 8am-4.30pm)
Provides professionally led pain management to people with long-term pain.

Pain Concern

Helpline: 0300 123 0789 (Mon-Friday 10-12 and 2-4)
Information and support for people with pain, and their families.

Read about managing symptoms and side effects

Organisations for families and carers

Carer’s Trust

Information and support for carers, and a directory of local care services.

Carer’s UK

Adviceline: 0808 808 7777 (Mon-Fri 10am-4pm)
Information, advice, and support for carers, including benefits checks, and advice on financial and practical issues.

Fruit Fly Collective

Provide information and support for families affected by cancer.

riprap

Website for teenagers with a parent with cancer. It provides information about cancer, real life stories, and support.

Winston’s Wish

Freephone Helpline: 08088 020 021 (Mon-Fri, 9am-5pm)
Provide support to children with a close family member who has a serious illness, and children who have been bereaved.

Read our information for family members

Information on practical issues and health services

Advice Direct Scotland

Tel: 0808 800 9060
Provide information and advice to people in Scotland on a range of issues, including financial and work.

Age UK

Advice line: 0800 678 1602 (Every day, 8am-7pm)
Provide information and advice to older people, including about work, money and care, as well as support to help people stay independent.

British Red Cross

Tel: 0344 871 11 11
Provides a range of support including lending medical equipment, support at home and help with transport.

Citizens Advice

Provide information and advice on a range of issues including work, benefits, healthcare, patient rights and information for carers.

Disabled Living Foundation

Helpline: 0300 999 0004 (Tue-Thurs 10am-4pm)
Provide free and impartial information and advice about equipment to help with daily living.

Fit For Work

Advice line: 0800 032 6235 (English) or 0800 032 6233 (Welsh)
Provide free, expert and impartial advice to anyone looking for help with issues around health and work.

GOV.UK

Provides information about government services, including information about benefits, transport, money and guidelines for hospital parking.

Health in Wales

Information about the NHS in Wales, and a directory of local services.

mygov.scot

Information about public services in Scotland, including health and social care services.

National Institute for Health and Care Excellence (NICE)

NICE produce guidelines that make recommendations for the NHS care of people with different health conditions. The guidelines are based on the best available evidence, and aim to improve the quality of healthcare.

NHS Apps Library

A library of health and wellbeing apps that have been assessed as being clinically safe and secure to use. Includes apps for managing fatigue, sleep problems, stress and anxiety.

NHS Inform

Tel: 0800 22 44 88
Provides information about different health conditions and living well, and local services in Scotland.

NHS Website

Provides information about health conditions, living well, care, and local services in England.

NHS Direct Wales

Tel: 0845 46 47
Health information in Wales, including local services.

nidirect

Information about local services in Northern Ireland, including health services and information and support for carers.

Turn2Us

Helpline: 0808 802 2000 (Mon-Fri 9am-8pm)
A national charity that helps people in financial hardship access benefits, charitable grants and support services.

Read about dealing with daily life with pancreatic cancer

Organisations for people with other types of pancreatic cancer and hereditary pancreatic cancers

AMMF – The Cholangiocarcinoma Charity

Tel: 01279 661479
Provides information and support to people with bile duct cancer.

Association for Multiple Endocrine Neoplasia Disorders (AMEND)

Offers information and support for people with MEN1.

BRCA Umbrella

Provides practical and emotional support to men and women with a fault in BRCA gene or are at high risk of BRCA related cancers. This includes an online support forum and information.

Neuroendocrine Cancer UK

Helpline: 0800 434 6476
Information and support for people with neuroendocrine tumours (NETs).

VHL UK/Ireland

Provides information about support for people with von Hippel-Lindau syndrome.

Read about different types of pancreatic cancer

Bereavement support

Compassion in Dying

Information line: 0800 999 2434 (Mon-Fri 9am-5pm)
Provides information on how to plan ahead for the end of life. Their website mydecisions.org.uk helps you plan ahead for your future treatment and care.

CRUSE bereavement care

Helpline: 0808 808 1677 (Mon, Fri 9.30am-5pm, Tues-Thurs 9.30am-8pm)
Offers support, advice and information to children, young people and adults when someone dies.

Dying Matters

Help people talk more openly about dying and bereavement, and to make plans for the end of life. They also have a list of services for people in the last years of life and their families.

Hospice UK

Tel: 020 7520 8200
Information about hospices, and a database of hospices in the UK.

Marie Curie

Support line: 0800 090 2309 (Mon-Fri 8am-6pm, Sat 11am-5pm)
Provides care and support for people living with a terminal illness and their families, including nurses and hospices.

Riprap

Website for teenagers with a parent with cancer. It provides information about cancer, real life stories, and support.

Winston’s Wish

Freephone Helpline: 08088 020 021 (Mon-Fri, 9am-5pm)
Provide support to children with a close family member who has a serious illness, and children who have been bereaved.

The Compassionate Friends

Helpline: 0345 123 2304 (everyday 10am–4pm and 7pm-10pm); Northern Ireland 0288 77 88 016 (10am–4pm and 7pm-9.30pm)
Support for people whose child has died at any age and from any cause.

Hospices can also provide bereavement support.

Other organisations

There are organisations that provide information and support to people nearing the end of their life, and their families.

There are also organisations that can help people affected by pancreatic cancer support and talk to children and teenagers about cancer.

Published September 2020

To be reviewed September 2022