Why is this important?
We’re working with the Less Survivable Cancers Taskforce and Cancer52 to develop a new policy report on research. This will focus on rare, less common and less survivable cancers.
We want to make sure that the people who make decisions about cancer research truly understand what matters most to patients and their families. Patient voices are essential in shaping effective policy that meets real needs. The insights you share in an interview with us will directly shape the recommendations we put to governments across the UK.
Our goal is to create the kind of research landscape that makes real progress for these cancers possible.
What are you going to do?
Over the coming months, we’re carrying out 45 – 60 minute interviews with experts in the research sector and people with a lived experience of rare, less common or less survivable cancers. Through these conversations, we want to build a clear picture of the barriers holding back research and most importantly, the solutions that could help drive progress.
Everything we learn will feed into our cross-cancer policy report, which we’ll use to influence governments and other key decision-makers across the UK. All information shared will be treated confidentially and used anonymously within our report.
How are the outcomes going to affect people affected by pancreatic cancer?
We have found that many of the barriers in research for pancreatic cancer are shared with other rare, less common and less survivable cancers. By joining forces with other charities and presenting a united case, we can push harder for change.
The UK Government is already showing interest in this area (for example, with the Rare Cancers Bill), so this is a real chance to make an impact. Alongside the wider recommendations, we’ll also draw out findings specific to pancreatic cancer to shape our own campaigns in the future.
How to get involved
If you’d like to take part in a 45 – 60 minute online interview or would like any further information, please contact Emma at emma.eusebi@pancreaticcancer.org.uk by Sunday 28th September.
We’ll explain everything in advance, and you’ll receive the topics and questions before we meet. The conversation is informal and guided by you – we’re here to listen to your story, your experiences and your views. We’ll give you the time and space you need to speak openly and honestly. We welcome participation from patients, survivors, carers and loved ones.
No scientific background or prior experience is needed to take part in this opportunity.
