The Center for Information and Study on Clinical Research Participation (CISCRP) is an independent non-profit organisation based in the US, dedicated to including the voice of the community in the clinical research process. As part of their mission, CISCRP regularly engage with patients and their families through interviews, patient (or community) advisory board meetings, and global surveys to include the voice of the patient community in research endeavors.
For this project, CISCRP, working on behalf of a pharmaceutical company, is planning a virtual interview project with individuals diagnosed with Pancreatic cancer and who have experienced unintentional weight loss (also known as cachexia) and/or their care partners.
What is the purpose of this interview project?
This virtual interview will provide an opportunity for those with pancreatic cancer and cachexia (and/or their care partners) to share their general thoughts on clinical research and provide feedback on a proposed clinical study evaluating a new, experimental treatment for cachexia associated with pancreatic cancer.
The goal of the interview is not to recruit for a clinical trial, but rather to learn from patients and care partners how to best create a clinical trial that takes into account the unique needs of individuals with this condition. Following the completion of interviews, CISCRP will prepare a final report summarizing insights from patients and caregivers about their experiences with cachexia as well as their feedback on a proposed clinical trial for cachexia and metastatic pancreatic cancer.
Who can participate?
CISCRP is looking for individuals who feel comfortable sharing their/their loved one’s experiences with cachexia related to pancreatic cancer.
Specifically:
- Adults (18+ years of age) diagnosed with, or those caring for someone diagnosed with, cachexia and Pancreatic Cancer
- Ideally, diagnosed within the past two years with pancreatic cancer
- Ideally, unintentionally lost >5% body weight (for example a 50kg person losing 2.5kg)
- Reside in the United Kingdom
What is involved?
The interview will be conducted virtually using an online platform (Zoom) as a 90-minute meeting with a 5-minute break in the middle. As a thank you for your time, an honorarium will be provided to those who are eligible and participate. Participants will be required to sign an agreement with the pharmaceutical company before taking part in the interview.
How do I get involved?
If you are interested in participating in this opportunity or have any additional questions, please contact:
Elena Wade
Project Manager, Research Services | Center for Information & Study on Clinical Research Participation (CISCRP)
Email: ewade@ciscrp.org
We look forward to hearing from you!
