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Latest news

30 March 2026
An update on the PERT shortages
An update on our work to address the PERT shortages, including the progress we've made so far, the current supply situation, and what we still need to...

30 March 2026
Personal stories behind the breath test trial announcement
Announcing that the world’s first breath test for pancreatic cancer was entering a national clinical trial was one of the most significant milestones ...

16 March 2026
The Rare Cancers Act 2026 – the Bill has officially become law!
We are absolutely delighted that on Thursday 5th March, the Rare Cancers Bill passed its final stage in Parliament, receiving Royal Assent and becomin...




