NHS systems should ensure that from the point of diagnosis and throughout a patient’s care, everyone with pancreatic cancer should be pro-actively offered support and care tailored to their needs. This includes ensuring:
- Access to prehabilitation and rehabilitation services
- Access to better nutritional management and specialist dietetic services
- Access to better psycho-social support services
- Access to better post-resection follow up care for people living beyond pancreatic cancer
NHS systems should ensure that everyone with pancreatic cancer has access to a 24/7 rapid access enhanced care service to get support with the symptoms and side effects of their cancer. This model should be a service delivery and rapid referral hub with close links to other specialist, secondary and local healthcare teams.
NHS systems should ensure that everyone with pancreatic cancer, regardless of where they are treated or cared for, has a hepato-pancreato-biliary or upper gastrointestinal clinical nurse specialist (HPB/UGI CNS) as their lead point of contact to oversee their care.