23 August 2016
Updated August 2017
Carole, diagnosed with a neuroendocrine tumour in 2014.
I wanted to write this because my experience is different from anyone else’s that I could find at the time of my diagnosis. Hopefully it might help someone else who is in my position.
8 January 2015
Updated January 2018
Roxanne, 26, diagnosed in 2014 with malignant pancreatic neuroendocrine tumour.
My pancreatic cancer journey has been a little different to usual. My family and I have a genetic condition called von Hippel Lindau disease which means we are prone to tumours and cysts on various parts of the body: brain, kidneys, eyes, adrenal glands and more, which can be malignant but are mostly benign. We attend annual screening to check for new growths. When I was called back for an MRI after my annual ultrasound in October 2013 of my pancreas and kidneys, I didn't think too much of it.
1 May 2014
Julie, 39 - diagnosed in 2013 with a neuroendocrine tumour of the pancreas - I attended an emergency doctors one weekend with tummy and back pain (I had suffered from IBS for years but the pain was not the same as usual). Having examined me the doctor decided I may have gall-stones so he sent me for an ultrasound.