Rarer forms of pancreatic cancer stories

These stories are from people with rarer forms of pancreatic cancer.

Andy standing in between his two sons, looking to camera and smiling
Real story


9 December 2022

Andy was 64 and taking part in a lung disease screening programme when a scan showed two growths on his pancreas. A year later, after surgery to remove them, he was formally diagnosed with a neuroendocrine tumour and a microcystic serous cystadenoma. He reflects on how lucky he was to be diagnosed early.

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23 November 2022

Dovile talks about being diagnosed with a rare type of pancreatic tumour. She shares her experience of treatment and the challenges she faces in her road to recovery.

Iain and his dog pose next to a Trig point
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16 June 2022

Iain was in his late 50s when he was diagnosed with cancer on the Islets of Langerhans in the pancreas. Thanks to early detection and treatment, he was given the all clear and tells us about life after the Whipple’s procedure.

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Carl L

24 January 2020

Carl was diagnosed with a rare form of pancreatic cancer in 2014, when he was 43, and had surgery to remove the cancer.

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22 January 2020

Veronica shares her experience of having the Whipple’s procedure 10 years ago.

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24 June 2019

Jamie was diagnosed with a pancreatic neuroendocrine tumour in 2017. He shares his experience of having surgery to remove his tumour.

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Alan P

10 January 2019

Alan was diagnosed with a tumour in his bile duct in 2017 – he had a Whipple’s operation followed by chemotherapy.

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9 August 2018

Jo shares her story of being diagnosed with a pancreatic neuroendocrine tumour.

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22 June 2017

Lauren was diagnosed with a glucogonoma in February 2017, when she was 32.

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Carole W

23 August 2016

Carole was diagnosed with a neuroendocrine tumour in 2014 and underwent surgery to remove the tumour

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8 January 2015

Roxanne, 26, was diagnosed in 2014 with malignant pancreatic neuroendocrine tumour.

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1 May 2014

Julie was diagnosed in 2013 with a neuroendocrine tumour of the pancreas when she was 39. 

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