Our Patient and Carer Advisory Board
All of our work is informed everyday by the experiences of people affected by pancreatic cancer.
Patients and carers are represented on our Board of Trustees, our Scientific Advisory Board and within our staff team. And almost all of our supporters, whether they are fundraising, campaigning or volunteering with us, have a personal experience of pancreatic cancer. Our nurses are in touch with people who are affected by pancreatic cancer every day via our support service.
Our Patient and Carer Advisory Board is there to help us ensure that we don’t miss any important opportunities to involve people affected by pancreatic cancer in the work and strategic direction of the charity.
So far this Board have:
- helped us with our thinking about how we extend our services
- helped us improve our website
- helped us develop our patient charter
- provided insight for the development of our latest five year strategy.
The Board is not fixed by way of membership – but we aim to always maintain a core group of between 8-10 patients and carers.
Meet the Patient and Carer Advisory Board
What our board members say
Being one of the fortunate few 'survivors' of pancreatic cancer I am passionate about offering support to fellow patients and carers .
After a delayed diagnosis of my pancreatic cancer I wish to help Pancreatic Cancer UK raise awareness of the symptoms to ensure less people are diagnosed too late.
As one of the fortunate few survivors of pancreatic cancer, I feel motivated and passionate about sharing my experience and representing other patients to ensure that their voices are heard.
We are extremely grateful to the people who support us as members of this advisory board with their insight and expertise.