Presentations from PERT shortage update and Q&A

29th April 2025, 12.00 - 1.30pm via Zoom

Pancreatic enzyme replacement therapy (PERT) is essential for people with pancreatic cancer, neuroendocrine cancer, pancreatitis and cystic fibrosis.  

As the intermittent shortages of PERT continue across the UK, it’s important that all health professionals have accurate, expert guidance to support patients during this challenging time. 

Following our PERT shortage guidance events last September, we’re back with an update and Q&A on the shortages. 

We teamed up with Pancreatic Cancer Action, Cystic Fibrosis Trust, Neuroendocrine Cancer UK and Guts UK to deliver this free webinar for all Clinical Nurse Specialists, Dietitians, GPs and Pharmacists supporting people affected by the shortages. 

You’ll hear an update on the current and future situation with the shortages, and an update on the importation and distribution process. There was then a Q&A with a panel of specialists. 

 

View the slides


Key findings from charity patient survey – Jeni Jones, Specialist Nurse, Pancreatic Cancer UK

Update on the PERT shortage – Mary Phillips, Senior Specialist HPB Dietitian, Royal Surrey County Hospital NHS Foundation Trust

Importation and distribution process – Julia Powell, Chief Executive Officer, Community Pharmacy Surrey & Sussex, Anna Larkham, Medicines Management Dietitian, Surrey Heartlands ICB

Watch the recordings

Recording: PERT shortage guidance for GPs and pharmacists

View the agenda


  • 12.00 – 12.05: Welcome – Jeni Jones, Specialist Nurse, Pancreatic Cancer UK
  • 12.05 – 12.10: Lived experience video
  • 12.10 – 12.15: Key findings from charity patient surveys – Jeni Jones, Specialist Nurse, Pancreatic Cancer UK
  • 12.15 – 12.25: Update on the PERT shortage – Mary Phillips, Senior Specialist HPB Dietitian, Royal Surrey County Hospital NHS Foundation Trust
  • 12.25 – 12.40: Importation and distribution process – Julia Powell, Chief Executive Officer, Community Pharmacy Surrey & Sussex, Anna Larkham, Medicines Management Dietitian, Surrey Heartlands ICB
  • 12.40 – 13.25: Q&A panel – Chair: Jeni Jones, Specialist Nurse, Pancreatic Cancer UK
    • Mary Phillips, Senior Specialist HPB Dietitian, Royal Surrey County Hospital NHS Foundation Trust
    • Kerry-Lee Watson, CF Specialist Dietitian, King’s College Hospital NHS Foundation Trust
    • Sian Bentley, Consultant Pharmacist, Royal Brompton & Harefield NHS Foundation Trust
    • Anthony Cunliffe, Macmillan National Lead Medical Adviser and Macmillan Clinical Adviser for London, and Joint Clinical Director, South East London Cancer Alliance
    • Ade Williams, Superintendent Pharmacist and Director of the M J Williams Pharmacy and lead Pharmacist at the Bedminster Pharmacy, Bristol
    • Julia Powell, Chief Executive Officer, Community Pharmacy Surrey & Sussex
    • Anna Larkham, Medicines Management Dietitian, Surrey Heartlands ICB
  • 13.25 – 13.30: Close

Learning outcomes:


By watching this session, you will:

  • Get up-to-date on the current situation with the PERT shortages
  • Learn about the importation and distribution process to enable better access to PERT
  • Take away practical tips and ideas to support your patients if they are running low or cannot get PERT
  • Grow your confidence in supporting patients during this challenging time

Who is this session for?


This webinar is designed for Clinical Nurse Specialists, Dietitians, GPs and Pharmacists. It is also relevant for other healthcare professionals working in primary care with people with pancreatic cancer. 

Our speakers


Chair: Jeni Jones, Specialist Pancreatic Cancer Nurse, Pancreatic Cancer UK

Speakers:

  • Julia Powell, Chief Executive Officer, Community Pharmacy Surrey & Sussex
  • Anna Larkham, Medicines Management Dietitian, Surrey Heartlands ICB
  • Mary Phillips, Senior Specialist HPB Dietitian, Royal Surrey County Hospital NHS Foundation Trust

Panel:

  • Mary Phillips, Senior Specialist HPB Dietitian, Royal Surrey County Hospital NHS Foundation Trust
  • Kerry-Lee Watson, CF Specialist Dietitian, King’s College Hospital NHS Foundation Trust
  • Sian Bentley, Consultant Pharmacist, Royal Brompton & Harefield NHS Foundation Trust
  • Anthony Cunliffe, Macmillan National Lead Medical Adviser and Macmillan Clinical Adviser for London, and Joint Clinical Director, South East London Cancer Alliance
  • Ade Williams, Superintendent Pharmacist and Director of the M J Williams Pharmacy and lead Pharmacist at the Bedminster Pharmacy, Bristol
  • Julia Powell, Chief Executive Officer, Community Pharmacy Surrey & Sussex
  • Anna Larkham, Medicines Management Dietitian, Surrey Heartlands ICB

If you have any questions, please don’t hesitate to get in touch with us at: hpnetwork@pancreaticcancer.org.uk

CPD Member certification