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Other sources of information and support

There are a wide range of other organisations that can provide information and support to people with pancreatic cancer and their family and friends. Below are details of some key organisations that you may find helpful.

Information and support for people with cancer

Cancer Research UK
Helpline: 0808 800 4040 (Mon-Fri 9am-5pm)
Information for anyone affected by cancer.

Elizabeth Coteman Fund
Tel: 01223 782171
Founded in memory of Elizabeth Coteman, an outstanding wife and mother, who died from pancreatic cancer in 2010, to provide support and friendship to those experiencing pancreatic cancer, and to promote and support the importance of research. Provide grants for expenses to take part in a clinical trial, and grants for people with pancreatic cancer who are struggling financially, for equipment, and for respite.

Healthtalk.org
Personal experiences presented in written, audio and video formats, including people talking about pancreatic cancer.

Hospice UK
Tel: 020 7520 8200
Information about hospices, and a database of hospices in the UK.

Macmillan Cancer Support
Support Line: 0808 808 00 00 (Mon-Fri 9am-8pm)
Provides practical, medical and financial support for anyone affected by cancer, including family members.

Maggie’s Centres
Tel: 0300 123 1801
Centres around the UK and online offer free practical, emotional and social support for anyone affected by cancer.

Marie Curie
Support line: 0800 090 2309 (Mon-Fri 8am-6pm, Sat 11am-5pm)
Provides care and support to people with a terminal illness and their families, including nurses and hospices.

My pancreas app

This app is free to download on iPhones and iPads for patients who might be having tests or treatment for pancreatic cancer, and their carers. It explains what pancreatic cancer is, and the tests treatments you may have, as well as how to manage diet problems.

NICan (Northern Ireland Cancer Network) Survivorship website
Information about services in Northern Ireland to support people with cancer and their families.

Something to look forward to

Charity supporting people with cancer and their families by providing access to a variety gifts. Find anything from tickets to events and attractions, restaurant meals, hotel stays, beauty treatments and more. They have gifts available specifically for people with pancreatic cancer. 


Information and support for managing symptoms and coping with pancreatic cancer

Be Mindful
A website from the Mental Health Foundation, offering an online mindfulness course and details of teachers.

British Association of Counselling and Psychotherapy
Tel: 01455 883300 (Mon-Fri 9am-5pm)
Information about counselling and database of registered therapists.

British Pain Society
Information on pain clinics, pain management programmes and other ways of managing pain.

British Society of Clinical Hypnosis
Tel: 01262 403 103
Information about choosing a hypnotherapist and a database of registered therapists.

Complementary and Natural Healthcare Council
Tel: 020 3668 0406
Information about complementary therapies, and a register of therapists.

Diabetes UK
Helpline: 0345 123 2399 (Mon-Fri 9am-6pm)
Information on managing different types of diabetes.

Electronic Medicines Compendium
Patient information leaflets for all licensed medicines.

Pain Association Scotland
Tel: 0800 783 6059 (Mon-Fri 8am-4.30pm)
Provides professionally led pain management to people with long-term pain.

Pain Concern
Helpline: 0300 123 0789 (Mon-Friday 10-12 and 2-4)
Information and support for people with pain, and their families.


Organisations for family members and carers

Carers Direct
Helpline: 0300 123 1053 (Mon-Fri 9am-8pm, weekends 11am-4pm)
Advisors provide information for carers living in England, including information about assessments, benefits, and national or local sources of help.

Carer's Trust
Information and support for carers, and a directory of local care services.

Carer's UK
Adviceline: 0808 808 7777 (Mon-Fri 10am-4pm)
Information, advice, and support for carers, including benefits checks, and advice on financial and practical issues.

Fruit Fly Collective
Provide information and support for families affected by cancer.

riprap
Website for teenagers with a parent with cancer. It provides information about cancer, real life stories, and support.

Winston’s Wish
Freephone Helpline: 08088 020 021 (Mon-Fri, 9am-5pm)
Provide support to children with a close family member who has a serious illness, and children who have been bereaved.

Information on practical issues and health services

British Red Cross
Tel: 0344 871 11 11
Provides a range of support including lending medical equipment, support at home and help with transport.

Citizens Advice
Tel: England 03444 111 444; Wales 03444 77 20 20; Scotland 0808 800 9060
In person at your local Citizens Advice Bureau.
Provide information and advice on a range of issues including work, benefits, healthcare, patient rights and information for carers.

Disabled Living Foundation
Helpline: 0300 999 0004 (Tue-Thurs 10am-4pm)
Provide free and impartial information and advice about equipment to help with daily living.

GOV.UK
Provides information about government services, including information about benefits, transport, money and guidelines for hospital parking.

Health in Wales
Information about the NHS in Wales, and a directory of local services.

mygov.scot
Information about public services in Scotland, including health and social care services.

National Institute for Health and Care Excellence (NICE)

NICE produce guidelines that make recommendations for the NHS care of people with different health conditions. The guidelines are based on the best available evidence, and aim to improve the quality of healthcare. 

NHS Inform
Tel: 0800 22 44 88
Provides information about different health conditions and living well, and local services in Scotland.

NHS Choices
Provides information about health conditions, living well, care, and local services in England.

NHS Direct Wales
Tel: 0845 46 47
Health information in Wales, including local services.

nidirect
Information about local services in Northern Ireland, including health services and information and support for carers.

Turn2Us
Helpline: 0808 802 2000 (Mon-Fri 9am-8pm)
A national charity that helps people in financial hardship access benefits, charitable grants and support services.


Organisations for people with other types of pancreatic cancer and hereditary pancreatic cancers

AMMF – The Cholangiocarcinoma Charity
Tel: 01279 661479
Provides information and support to people with bile duct cancer.

Association for Multiple Endocrine Neoplasia Disorders (AMEND)
Offers information and support for people with MEN1.

BRCA Umbrella
Provides practical and emotional support to men and women with a fault in BRCA gene or are at high risk of BRCA related cancers. This includes an online support forum and information.

NET Patient Foundation
Helpline: 0800 434 6476 (leave a message and they will call back)
Information and support for people with neuroendocrine tumours (NETs).

Neuro Foundation
Tel: 020 8439 1234
Provides information and support for people with Neurofibromatosis type 1.

Tuberous Sclerosis Association
Provides information and support for people with Tuberous Sclerosis.

VHL UK/Ireland
Provides information about support for people with von Hippel-Lindau syndrome.

Bereavement support

CRUSE bereavement care
Helpline: 0808 808 1677(Mon, Fri 9.30am-5pm, Tues-Thurs 9.30am-8pm)
Offers support, advice and information to children, young people and adults when someone dies.

Winston’s Wish
Freephone Helpline: 08088 020 021 (Mon-Fri, 9am-5pm)
Provide support to children with a close family member who has a serious illness, and children who have been bereaved.

Hospices can also provide bereavement support.