Trevor

Trevor was diagnosed with pancreatic cancer in 2014. Almost seven years on, he shares his experience of having Whipple’s procedure and chemotherapy and keeping fit and well.

Trevor

I was diagnosed with pancreatic cancer in July/August 2014. I had been living in Kenya for 10 years and came back to the UK in May 2014 and had no family in the UK at that time. I collapsed in the street and was rushed into my local hospital by ambulance. In A&E a doctor examined me and said it was likely that I had gallstones. I was given a scan which showed that I had gallstones and also a shadow on my pancreas.

Getting diagnosed and preparing for treatment

A few weeks later, I received a phone call from a specialist centre in London and was requested to visit that hospital the following morning.

At the appointment, the consultant and his assistant explained to me that I had pancreatic cancer and that it was possible to have a Whipple’s operation to remove the cancerous tissue. He explained the risks of having the operation and also not having the operation. I quickly considered the options, and decided that I had no choice but to have the operation. The consultant told me that he already had a date booked for the 5th October 2014.

Even though I only had about 5 weeks till the operation I tried to get prepared for the operation by getting as fit as I possibly could. Unfortunately on the 5th October 2014 the hospital did not have a bed for me in the High Dependency Ward so the operation was postponed until the 5th November 2014.

Treatment and recovery

The operation lasted 5 hours. I was in the High Dependency Ward for approximately 4 days and in the recovery ward for approximately 7 days. I was discharged approximately 11 days after the operation. The surgeon explained that they removed one third of my pancreas, removed the gall bladder and gallstones, plus the edge of my stomach, and that the operation had been successful. The important information was that the cancer was only grade 1 and was all removed. Prior to the operation, I had symptoms for gallstones but no symptoms for pancreatic cancer and it had been caught very early.

After recovery at home, I then went on to have approximately six months of chemotherapy and was given Gemcitabine. My doctor had told me that before and after the operation one important thing to do is to walk as much as possible and that’s what I did and have continued to do so even now.

Continuing care and being discharged

After a while I developed a cyst in the area where the operation was done and the liquid inside it became infected, so I had to have antibiotics to treat the infection and reduce the inflammation. This happened a few times. Then my consultant arranged for me to visit the specialist centre again and under a local anaesthetic a needle was inserted into the centre of my body into the cyst and the liquid was removed. The liquid was tested and was not cancerous.

In 2020 I had a hernia repair to re-enforce the trunk area where I had the operation. I have been supervised for chemotherapy and check-ups by another doctor in my local hospital.

In 2020 my doctor explained that I had then completed 5 full years since I had the Whipple’s Operation and that he wished to discharge me as I appear to be no longer at risk. Whilst he has written to my GP advising him of the 5 year term, I have agreed an arrangement that the Oncology team will still give me a blood test once a year for additional reassurance.

Life after pancreatic cancer

As a result of the operation my pancreas no longer produces enzymes so I take Creon 25000. My pancreas still seems to be working ok in other ways so I am not diabetic. Some days I do not give myself the right amount of enzymes or I eat the wrong things and have an upset stomach, but a lot of days I manage to keep my digestion stable and keep my weight fairly stable as well.

My wife eventually joined me in the UK in 2016 after immigration restrictions and our daughter was born in June 2017. This was much to the surprise of my doctor who had considered that I might have been affected by infertility or even impotence as a result of the Gemcitabine treatment. I am generally fit and well and work full time and average over 8,000 steps a day.

Instead of considering that I was unlucky to get Pancreatic Cancer, I consider that I was very lucky: lucky to have had gallstones which made the discovery of the cancer so early, lucky to have had such good treatment from the specialist and local medical teams, lucky I am married to a lovely lady and have a lovely daughter. I concentrate on being as happy as I can every day!

July 2021