Equipment at home
You may need equipment to help you manage at home, such as a commode (portable toilet) or hospital bed. The district nurse or an occupational therapist will see what equipment you need, and help you to get it.
Your local hospice or charities such as the British Red Cross may also be able to lend some equipment. If you are being treated in hospital, the occupational therapy team may assess you before you go home so the equipment is ready.
When it’s not possible to stay at home
It’s not always possible to stay at home, as it can sometimes be difficult to get the care or equipment that you need. If you need treatment to manage your symptoms, you may go into a hospice or hospital for a short time. You will be able to go home once your symptoms are under control. But if you need longer-term care for weeks or months, you may go into a care home. Your GP or nurse can answer any questions you may have about this.
Some people would rather not die at home. If you are at home, your family will be your main carers, which can be stressful. It may also take longer for the GP and nurses to come, especially at night or at the weekend. Some people may not want their families to link the home with medical equipment or any upsetting memories.