Research Involvement Network

Work in partnership with researchers to help shape their work by sharing experiences of diagnosis, treatment and care

Our Research Involvement Network is a group of people who each have a personal connection to pancreatic cancer, including patients, carers, loved ones and survivors. They help shape Pancreatic Cancer UK’s work and the work of researchers by getting involved in a variety of different opportunities ranging from commenting on lay summaries before funding applications are submitted, reviewing applications, attending focus groups, reviewing patient information sheets and sitting on committees for different clinical trials.

The group has a diverse range of views and experiences and their insight helps to ensure that only the highest quality research is being conducted.

Why is your involvement important?

By involving people affected by pancreatic cancer at all stages of the research process, we’re able to increase our understanding of pancreatic cancer and ensure that the research being conducted is relevant to the needs of people affected by pancreatic cancer. This means moving beyond thinking of patients  as participants in a study, but as partners in setting research priorities, selecting the research that should be funded and guiding researchers with their work. No research background is required to be a member of the Network.

What can you expect from being part of the group?

Through monthly bulletins, we keep the network up to date on the latest research involvement opportunities, events and news.

Members can choose how, when and to what extent they want to contribute and can be involved as much or as little as they like.

I can't tell you how much this is helping me. Its now been 8 years since losing my sister Lorraine, and the experience was so devastating it is still raw. If we (I'm including Lorraine here) can help others affected by pancreatic cancer then it wasn't all for nothing.

Jackie Edgeller, Member of the Research Involvement Network

How can I get involved?

If you’re looking to join the Research Involvement Network, please fill in the application form below. You can also contact us via

If you’re a researcher and would like to find out how you can involve people affected by pancreatic cancer in your research, please visit our lay involvement page

Join the Research Involvement Network

Take a look at some of this month’s opportunities for members of the Research Involvement Network

Help with the dissemination of research investigating pancreatic cancer risk prediction by reviewing the plain-English summary

Find out more