How will the coronavirus affect people with pancreatic cancer?
This page explains what coronavirus (COVID-19) means for you if you have pancreatic cancer, and how it may affect you. There is information on who may be at risk of becoming more seriously ill if they were to get coronavirus, including information for people who are shielding – such as people having chemotherapy. There is also information for people with pancreatic cancer who are not shielding, but may still be at risk from coronavirus.
- Who is more at risk of getting ill from coronavirus?
- Advice for people shielding
- Advice for people with pancreatic cancer who are not shielding
- Support bubbles
If you have cancer and are having chemotherapy, you are more at risk of becoming seriously ill if you get the coronavirus infection. This is because chemotherapy weakens the immune system, making it harder for your body to fight an infection. People having immunotherapy will also be more at risk for the same reason. There is an immunotherapy clinical trial for pancreatic cancer. People having these treatments have been asked to shield and follow specific advice.
Even if you are not currently having chemotherapy, you should still be careful about protecting yourself from coronavirus. Some people may be more at risk of getting ill if they get coronavirus. This includes:
- people with a weakened immune system from chemotherapy
- people having radiotherapy or chemoradiotherapy
- people over 70
- people with diabetes
- people who are still recovering from surgery, or have had their spleen removed – some surgery for pancreatic cancer involves removing the spleen.
If this is you, follow the NHS advice carefully. Stay at home, wash your hands carefully and often, and don’t touch your face if your hands aren’t clean. If you do go out, stay 2 metres (6 feet) away from others.
You might have heard in the media that people with diabetes have an increased risk of getting ill from coronavirus. If you have diabetes, try to manage your diabetes carefully, control your blood sugar levels as well as possible, and follow social distancing rules. You should contact your GP or diabetes team if you have any concerns about managing your diabetes. Diabetes UK have information about diabetes and coronavirus, and how to get support from your medical team.
If it is some time since you had treatment such as chemotherapy or surgery (unless you had your spleen removed), you will be at lower risk of becoming seriously ill – unless you have other health conditions. But continue to follow the NHS advice about coronavirus.
The government has started to ease the lockdown restrictions – read what this means for you in our blog. If you live in England or Northern Ireland and you or someone close to you live alone, you can now form a “support bubble”. This is called an "extended household" in Scotland. Read more about this below.
People who are extremely vulnerable and at very high risk of severe illness from coronavirus have been advised by the NHS to shield over the last few months. This includes people with cancer who are having chemotherapy. People who have recently finished chemotherapy may also be at high risk of severe illness from coronavirus. It also includes people having immunotherapy.
If you are having chemotherapy, you are at higher risk of getting any infection, not just coronavirus. This means that it may not be clear whether symptoms are coronavirus or another infection. Read more about infections and chemotherapy. You may not necessarily have the standard symptoms of coronavirus. For example, not everyone will feel hot – some people with a very high temperature will feel cold and shivery.
If you get any symptoms of an infection call the emergency number your chemotherapy team will have given you. If you can’t get through, contact your clinical nurse specialist (CNS) or medical team. You could also try the consultant’s secretary or hospital switchboard if you struggle to get through to your medical team. If you still can’t get through, call 111, or 999 if it’s an emergency. If you live in Scotland and get symptoms, you can also call the Cancer Treatment Helpline on 0800 917 7711 as well as the emergency number from your chemotherapy team.
If you have been shielding, you will have been advised to stay at home and avoid any face-to-face contact. You can now leave your home if you are shielding, but must maintain strict social distancing, staying at least 2 metres from others. If you live in England and Northern Ireland, you can go outside with people you live with, or if you live alone you can spend time outside with one other person. In Scotland, you can meet with one other household outside as long as there are no more than 8 people. In Wales, you can meet people you don’t live with as long as you stay outside.
If you live in England or Northern Ireland, this advice is changing from 6 July. From this date you will be able to meet with people outside of your household, in a group of no more than 6 people. You must maintain strict social distancing with people that you don’t live with, but in England you will no longer have to follow this guidance with members of your own household. If you live alone, you will be able to form a ‘support bubble’ with another household, which means you can spend time with each other inside your homes. Read more about the changes from 6 July in our blog.
We understand that you may have questions about the changes to shielding advice, and what these mean for you. You can speak with our specialist nurses on our free Support Line with any questions or concerns that you may have.
It’s up to you if you feel comfortable going out at the moment. But if you do, it’s important that you are careful and take precautions to keep yourself safe. You are still at risk of getting seriously ill if you get coronavirus. If you are worried about what this means for you, speak to your medical team.
- You should still stay at home as much as possible and minimise the amount of time you spend outside.
- If you do go out, take extra care to minimise contact with others by keeping 2 metres apart.
- You could try going out when there are fewer people around – for example early mornings, and try to stick to open spaces.
- Always wash your hands thoroughly after you’ve been out, and don’t touch your face.
- Don’t share anything with others – for example cups or drinks bottles.
- Don’t go into other buildings, such as other people’s houses, or shops.
- Don’t attend any gatherings, such as parties, weddings or religious services.
- You should strictly avoid contact with anyone who has symptoms of coronavirus.
- you try to keep 2 metres away from them
- minimise as much as possible the time you spend time in the same room as them, and try to keep rooms well ventilated
- everyone in the home should regularly wash their hands thoroughly, and should avoid touching their face.
We know that following this advice will be very hard, especially when you are coping with pancreatic cancer and will want support from your family. Read about ways to help you cope below.
People who do live with you should stay at home as much as possible. When they do go out, they should carefully follow the guidance on social distancing, avoid people they don't live with, stay 2 metres away from others, and thoroughly wash their hands. Read more on the NHS website. You might have heard about “support bubbles” or "extended households" in Scotland. Be aware that people who are shielding are advised not to form support bubbles.
It is still ok to have visits from professionals providing healthcare or personal care as long as they don’t have symptoms of coronavirus and thoroughly wash their hands.
- If you live in England and are at very high risk of serious illness from coronavirus, register on the GOV.UK website or call 0800 028 8327 to get support, for example with food deliveries.
- If you live in Scotland, the Scottish government has set up a text message service to provide support to people who are shielding. They should write to you to tell you how to register for this. You can also contact your local authority’s shielding support line.
- If you live in Wales, you can contact your local authority for support – the contact details should be in the letter from the NHS.
- If you live in Northern Ireland, you can contact the COVID-19 Community Helpline.
What does this mean for my treatment?
Speak to your medical team about what these measures might mean for your treatment. Each situation will be specific to the individual person, and your doctor or nurse can talk through what it means for you. Some treatment may be changed or delayed to try to reduce the risk of you getting unwell from coronavirus.
The NHS may provide support remotely where possible – for example by telephone, email or Skype. Some hospital appointments may be postponed or cancelled, so confirm your appointment before travelling to the hospital.
Read more about what treatment and appointments may be like at the moment in our blog.
You will probably have worries or questions about how coronavirus and shielding will affect your treatment. You can speak to our specialist nurses on our free Support Line. They can provide information tailored to your situation.
Read more information for people at very high risk from coronavirus on the GOV.UK website.
If you have pancreatic cancer you may still be more at risk of getting ill if you get coronavirus, even if you aren’t currently having chemotherapy. This includes people over 70, people with diabetes, people who have a weakened immune system as a result of recent chemotherapy, people having radiotherapy or chemoradiotherapy, and people who have had their spleen removed through surgery.
You should carefully follow the government’s advice on hygiene and social distancing.
- Stay at home as much as possible.
- If you do go out, be careful to minimise contact with anyone not in your household, and stay at least 2 metres (6 feet) away from them.
- Make sure you wash your hands regularly.
- Read more on the NHS website.
Read what the current advice means for you if you are at higher risk of getting ill from coronavirus but aren’t shielding.
If you are having care at home from a community care team, they may support you through phone calls if home visits aren’t necessary. Call your GP surgery or the community care team if you need support.
If you live in England or Northern Ireland, and either you or someone close to you live alone, you could think about forming a “support bubble”. In Scotland, this is called an "extended household". This means that you would be able to meet with people in the support bubble or extended household indoors as well as outside, be less than 2 metres apart and stay overnight. It would include the whole household of the person who doesn’t live alone. You would effectively be able to act as if you were members of the same household. You should only form a support bubble or extended household with one other household, and should not change or add to your support bubble or extended household.
Be aware that if you have pancreatic cancer you may be at risk of getting unwell from coronavirus. You are advised to bear this in mind when thinking about forming a support bubble or extended household. People who are shielding are advised not to form support bubbles or extended households.
If anyone in your support bubble or extended household gets coronavirus symptoms, everyone should stay at home. If anyone is contacted as part of the test and trace programme, the person contacted should stay at home. If the person contacted gets coronavirus symptoms, everyone in the support bubble or extended household must then isolate.
We are part of the One Cancer Voice group of cancer charities that are working together to provide information about coronavirus and cancer.