Presentations from health professional events

We began by discussing how to manage conversations around depression and anxiety. We shared guidance on opening up conversations around spirituality and sex and relationships and tips on supporting patients with these. Finally, we explored how to talk to children about cancer, and how to open up conversations around finance.

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We began by exploring best practice when it comes to breaking bad news, how to break the barrier of people being resistant to having conversations around palliative care, and how to have conversations with patients and their loved ones on end of life and support for dying well. We also discussed whose responsibility it is to have these conversations.

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We began with an overview of SABR, the use of this treatment for patients with unresectable pancreatic cancer and an update on clinical trials in this area. We also had an overview of focus ultrasound, its potential treatment for people with pancreatic cancer, and current trials. 

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During this event we found out everything you need to know about genomic medicine and the impact on your practice. We also explored the logistics, challenges, risks and benefits including when to refer and who to refer, and the impact on treatment options.

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During this event we explored new developments in the early diagnosis of pancreatic cancer.

We began by looking at a study exploring what support GPs need to start using new pancreatic cancer tests as soon as they become available. We then heard about the world’s first breath test for pancreatic cancer. To finish, we found out about the development of a decision risk tool for early diagnosis of pancreatic cancer among new-onset diabetes in UK primary care. 

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Diabetes Specialist Nurse and Education and Research Associate, Vicki Alabraba and Laura McGeeney, Pancreatic Specialist Dietitian joined us to deliver a session on Diabetes and pancreatic cancer.

Vicki and Laura took a deep dive into type 3c diabetes discussing the potential causes, characteristics and diagnosis, how it differs from type 1 and 2, therapeutic and nutritional management, impacts on treatment options and managing these, as well as managing diabetes at the end of life.

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Specialist dietitians from across the UK joined us to deliver this session on dietetic management in pancreatic cancer.

They provided a detailed, grounding knowledge on nutritional assessment, nutritional management, pancreatic exocrine insufficiency (PEI) and pancreatic enzyme replacement therapy (PERT), and type 3c diabetes.

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We teamed up with dietitians from across Northern Ireland again this year to deliver this free, two-part event on nutritional management in pancreatic disease, for dietitians and CNSs based in Northern Ireland.

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This free online event explored symptom assessment and management for people living with pancreatic cancer.  We looked at: nausea, diarrhoea, constipation, fatigue, pain, thromboembolism, gastric outlet obstruction (GOO), biliary obstruction, ascites and lymphoedema.

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For the third year running, we teamed up with senior specialist HPB dietitian, Mary Phillips, to deliver this free online session on pancreatic exocrine insufficiency (PEI) in pancreatic cancer and the effective use of pancreatic enzyme replacement therapy (PERT).

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This two-part event was designed for all healthcare professionals working in supportive roles with people with pancreatic cancer, these sessions provided a good knowledge and understanding of the key areas of a pancreatic cancer patient’s pathway with lots of useful tips to take away.

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This free, virtual educational session for healthcare professionals explored ways to support your patients and to cover potential blind spots that could be key for your patients at this time.

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In this session we were joined by Rachel and Michelle from the Diabetes Centre at Ulster Hospital to explore diabetes management in pancreatic cancer.

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In this free, virtual session for healthcare professionals we explored the nutritional assessment and management of pancreatic cancer as well as PEI and PERT and type 3C diabetes.

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We worked with the Belfast and Southern Health and Social Care Trusts to deliver this free, two-part event on nutritional management in pancreatic disease, for dietitians and CNSs based in Northern Ireland.

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In this free Q&A we posed your questions around PERT and pancreatic cancer to our panel of experts.

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In this free online session we outlined 3 ablative therapies;  radiotherapy, including SABR, IRE, Oncosil.  We explored what the therapies are, who’s suitable for them, the advantages and disadvantages of each and what patients may expect from them.

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This free online session on pain management within pancreatic cancer looked at what types of pain there are, what causes them, how to assess them and what ways there are to manage them.

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This free education session explored pancreatic exocrine insufficiency (PEI) in pancreatic cancer and pancreatic enzyme replacement therapy (PERT).

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This free virtual workshop for healthcare professionals explored personalised care for pancreatic cancer patients and what best practice in this area might look like.

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This free, virtual educational session provided an in-depth exploration of dietetic management in pancreatic cancer. Designed for UGI/HPB specialist nurses and dietitians we discussed the nutritional assessment and management of pancreatic cancer.

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Designed for all healthcare professionals working in supportive roles with people with pancreatic cancer, these sessions provided a good knowledge and understanding of the key areas of a pancreatic cancer patient’s pathway.

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Created and delivered by a Diabetes Specialist Dietitian and Diabetes Specialist Nurse,  this event explored type 3c diabetes and the therapeutic and nutritional management of diabetes in pancreatic cancer.

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We teamed up with specialist dietitians to deliver this free, virtual educational session for healthcare professionals where we explored the nutritional assessment and management of pancreatic cancer.

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We teamed up with the Belfast and Southern Health and Social Care Trusts to deliver this free, two-part event on nutritional management in pancreatic disease, designed for dietitians based in Northern Ireland. Part one explored the surgical management of pancreatic diseases and nutritional management of acute and chronic pancreatitis. Part two explored the nutritional management of pancreatic cancer and type 3c diabetes.

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We teamed up with senior specialist HPB dietitian, Mary Phillips, to deliver this free online education session on pancreatic enzyme replacement therapy (PERT). The session explored what pancreatic exocrine insufficiency (PEI) is and how to recognise and diagnose PEI, and what pancreatic enzyme replacement therapy (PERT) is, the impact it can have on patients’ symptoms and quality of life, and how to advise your patients on effective use of PERT and troubleshooting.

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This year’s National Study Sessions explored enhanced supportive care (ESC) in pancreatic cancer. We ran a selection of free, virtual events throughout October on: symptom assessment and management (7th); effective communications (12th); emotional support (19th); end of life care (26th); and models of practice in ESC (28th).

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We teamed up with the HPB team at Derriford Hospital to deliver this free, online event designed for all healthcare professionals working with pancreatic cancer patients in the South West. The session explored key areas of a pancreatic cancer patient’s pathway from diagnosis and treatment to nutritional management and palliative care.

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We teamed up with the Macmillan Primary Care Cancer Framework to deliver this free webinar for all healthcare professionals working in primary care in Wales. The session explored: early diagnosis of pancreatic cancer; pancreatic exocrine insufficiency (PEI), pancreatic enzyme replacement therapy (PERT) and diabetes; and opportunities to improve patient care in primary care.

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At our online breakfast briefing we shared our Transform lives: Prescribe campaign which seeks to ensure everyone with pancreatic cancer has access to pancreatic enzyme replacement therapy (PERT).

Find out more about the campaign and what you can do to support

This free virtual educational session explored diabetic management in pancreatic cancer delivered by Margaret Palmer, Diabetes Nurse Specialist, Leeds Teaching Hospitals NHS Trust and Lynne McCallum, Pancreatic Cancer Specialist Nurse, Pancreatic Cancer UK.

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This free, online, two-part event was designed for all health care professionals working in supportive roles with people with pancreatic cancer. The sessions explored key areas of a pancreatic cancer patient’s pathway including: an overview of pancreatic cancer; the emotional impact of pancreatic cancer diagnosis and how you can support your patients while looking after yourself; the importance of prehabilitation and rehabilitation; treatment options; palliative and end of life care; dietetic management; fatigue management; and pain management.

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This free virtual education session was aimed at all healthcare professionals with no or limited pancreatic cancer experience.

Chaired by Patient & Carer Board Member, Lesley Gooburn, in the session, we were joined by Ruth May, Chief Nursing Officer, NHS and Donna Adcock, Deputy Chief Nurse, North West London University who both shared their personal experiences of pancreatic cancer. Our Specialist Pancreatic Cancer Nurse, Lynne McCallum then gave an introduction to pancreatic cancer, sharing how pancreatic cancer presents, the symptoms associated with this disease and the ongoing supportive care needs of people with pancreatic cancer.

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Every October we hold our National Study Day, bringing together health professionals from around the country to learn about the latest developments in pancreatic cancer.

This year, in light of everything going on, we brought everyone together at a variety of virtual sessions across the month where we  explored how we can improve patients’ experience through treatment, dietetic management and emotional support.

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In March we had to postpone our Annual Summit in light of the coronavirus pandemic. As we enter the recovery phase of the pandemic, we must not lose the amazing momentum the pancreatic cancer community has gathered to find innovative solutions to maintain treatment and care. And so we brought the Summit back in September covering the same vital topics through virtual sessions.

There were three, 2-hour sessions essential for anyone with an interest in pancreatic cancer from health professionals, researchers and policy makers to patients, carers and supporters.

• Improving Access to Chemotherapy, 17th September 2020
• Improving Access to Optimal Nutritional Care, 22nd September 2020
• Improving the Pathway from Diagnosis to Treatment, 29th September 2020

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This was a free educational session facilitated by Counselling Psychologist, Lucy Davidson and Clinical Psychologist, Emma Porter.

Specifically designed for Clinical Nurse Specialists working with pancreatic cancer patients, this workshop offered an opportunity in an interactive and informal setting, to explore and reflect on some of the emotional challenges of pancreatic cancer. Attendees refreshed and enhanced their psychological skills, developed a better understanding of patient needs and considered the impact that this work has on them.

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This was a free educational session about dietetic management in pancreatic cancer, run in partnership with the Dietetic team at Leeds Teaching Hospitals NHS Trust.

This event was open to all dietitians, specialists and non-specialists who are hospital or hospice based or in the community, as well as student dietitians.

Delegates learnt about the implications, consequences and nutritional management of patients diagnosed with pancreatic cancer.

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Introduction to pancreatic cancer – Lynne McCallum, Pancreatic Specialist Nurse (North), Pancreatic Cancer UK

Nutritional assessment & treatment in pancreatic cancer – Anna Burton, HPB Dietitian, Leeds Teaching Hospitals NHS Trust

Managing diabetes alongside pancreatic cancer – Louise Hopewell, Diabetic Nurse Specialist, The Christie NHS Foundation Trust

Pancreatic surgery, enteral tube feeding & enzymes – Kelly Wilson, Pancreatic Dietitian, Leeds Teaching Hospitals NHS Trust

Our annual National Study Day brought together nurses and dietitians from around the country to learn about the latest developments in pancreatic cancer.

We explored how we can improve patients’ experience and cater to unmet needs. We discussed dietary and nutritional management, psychological support, pathways for surgical and inoperable patients, palliative care and early diagnosis. We also heard from people with personal experiences of pancreatic cancer and we heard about practical examples of good practice care in the field.

The experiences and needs of people with pancreatic cancer – Sarah Bell, Head of Services, Pancreatic Cancer UK

Dietary and nutritional management – Liz Bradley, Specialist Dietitian – Liver, HPB and NET, Queen Elizabeth Hospital Birmingham

Finding the hope whilst facing the reality: The psychological challenges of living with pancreatic cancer – Dr Lucy Davidson, Counselling Psychologist, HCA Healthcare UK

The vital role of cancer nurses: treating and caring for people with pancreatic cancer and their carers – Dr Karen Roberts, Chief Nursing Officer, Macmillan

The role of a support worker and navigator – Joanne Grand, Macmillan Upper GI Support Worker/Navigator, University Hospitals of North Midlands NHS Trust

Offering psychological support through HNA, support group and Living with Days – Steph Gooder, HPB Oncology Clinical Nurse Specialist, Stockport NHS Foundation Trust

Optimisation for surgery – Neil Bibby, Macmillan Senior Specialist HPB Dietitian, Manchester University NHS Foundation Trust

Surgery for pancreatic cancer, current strategies and borderline cases – Mr Christian Macutkiewicz, Consultant HPB Surgeon, Manchester University NHS Foundation Trust

Systemic treatment options for patients with advanced pancreatic cancer – Dr Kate Young, Clinical Research Fellow and Senior Registrar, Royal Marsden Hospital

Hunts Community Cancer Network – cancer care in the community, a new approach – Andrea Cliff, Community Cancer Nurse Specialist, North West Anglia NHS Foundation Trust

Type 3c diabetes and pancreatic cancer – Tom Lander, Senior Dietitian for Upper GI Surgery, University Hospitals Bristol

PERT prescribing: a snapshot of national practice – Mr Richard Wilkin, Academic Clinical Lecturer, University of Birmingham

Common symptoms of pancreatic cancer and advance care planning – Dr Nikki Reed, Lead Community Consultant in Palliative Medicine, Marie Curie Hospice West Midlands and University Hospitals of Birmingham NHS Trust

Pain management and cross team work – a case study – Dr Margred Capel, Consultant in Palliative Medicine and Clinical Director, City Hospice

Early diagnosis –  Stephen Pereira – Professor of Hepatology and Gastroenterology, University College London